Yesterday I still hadn't heard anything about my stay in the Royal Free!
I spoke to the Dr at the hospice, and also my psychologist. The psychologist suggested phoning the lymphoma nurse, rather than my consultants secretary, as i've already been on contact with the secretary and had no luck!
Jane (Lymphoma Nurse) was great. She went to find Adam, the Dr who deals with trials, who instructed someone to e-mail the Royal Free. By the end of the day, they still hadn't heard anything from the RF, so decided to make me an appointment for Monday (At Christies) to check up on me, as i've been experiencing a few new side effects (including marks on my skin where the tumours lie).
This morning I received a call from the RF! YAY!
I've got a clinic appointment on Wednesday, at 1:30pm. Good job it's at that time, because it's a 3 3/4 hour drive each way! Hopefully they will give me a date for my treatment (which is called Basiliximab for anyone who doesn't know, and this tagrets the CD25 marker!)
So fingers crossed that something will start to happen next week please...as i've started to get anxious!
