We got the worst news today. Our lovely, kind, newly-married son (9months) has a tumour too. My cancer is hereditary. And he has a tumour measuring 11 cms in his abdomen next to the left kidney. I am beyond grief - I feel sort of dead.
When you know you have cancer yourself, and it's an incurable type it's bad enough. When you find out your only child has it too - well, multiply that bad feeling by about a 1000.
Sorry if I sound self-pitying. Actually all my pity is for him. Ok - maybe a bit's for us.
He has to have an MIBG imaging scan, then a kidney function test (they can't tell yet if it's actually attached to kidney) then major surgery in about 3 weeks or so. I know exactly what he will go thru because I had it. And it was hell.
My poor mum. I'm her only child and my son is her only grandchild. I have a sister on my fathers side, and she has it too. My father is the carrier.
My husband is so strong, but I know he's dying inside. I intend to be there every minute for my son - and I have to be honest and say that's all that's keeping me going. I am so not a drama queen - far from it - but I honestly feel a fine line away from flipping at the moment.
FormerMember
Jeanie
I read your recent message and I too have been thinking about you and your family all day. I am so disappointed for your son and you of course.
I reiterate everything that everyone else has said, be as positive as possible, treatments are changing and improving all of the time and you are amongst friends here, this site has been such a comfort and strength to me and I know, many other as well.
Thinking of you all, look after yourself as well as your son, take each day or hour as it comes and remember, everyone will help here as much as possible. Keep us in the loop, please.
I think most of us have been watching for the past day or two to find out your son's results, as we were so worried and concerned for your family. I can't imagine what yoiu must be feeling, I am the sister of Liz at the top of the page, and I know how much it devastated my mother when Liz was diagnosed with breast cancer, then my mother was diagnosed 7 months later with the same.
I hope your son's treatment goes well, and I am sure your husband must be crushed to find his wife and son both with the same tumor, Good luck to both of you, and your husband and I hope you find the strength to support each other through what must be a nightmare for you all.
My thoughts are with you. xx We are all hee for you when you feel yoiu want to talk.
