Debs_P's blog

OK my dedicated followers of the glamorous lifestyle of a brain tumour patient on one wage! Well I know I left you with a cliff hanger.........and yes I am feeling better today, probably just as well because my NON and onc still haven't phoned me back. Am assuming its because its not urgent and I am fine........but I am NOT phoning and chasing. Anyway headache free and two loads of washing done and hung out I head…

Morning All, Well yesterday morning I gave in and phoned Kim my NON and she was going to speak to Emma my onc after their MDT conference meeting. I gave her my mobile number as I wanted to go to Tesco's and get some fresh air - well I wanted groceries too of course, Kim did say that they have two other "gentlemen" at Queens who suffer brain swelling while they are on Temodar and I could be one of those patients also…

Morning All, Yesterday started with another background headache and slight nausea put at bay with my cocktail of steroids and paracetamol (I will be phoning my SNON later) followed by a little "spat" with the hubby. Being of exactly the same age, we are both stubborn - him refusing to apologise and me knowing he wouldn't, refusing to backdown LOL The not speaking went on for about 2 hours after which he generally assumes…

Evening What Nowers! ? I feeeeeeeeeel good da nananananaaaaaaaaaaaaaaaa I knew that I would da nanananananaaaaaaaaaaa so good, so good ? OK maybe not that good but much better. I felt totally kack when I woke this morning, nauseaus & headachy, not the buttercup rage but a dull pounding everytime I stood or bent over......so I forced down a small bowl of muesli and took my cocktail of steroids and paracetamol. My…

Morning all, yes I know I am late again but the chemo seemed to really whack me out yesterday and I have been worrying about my headaches. They are like when the RT caused my brain to swell and I was put on steroids........they went - heaven! but now I am down to 1mg a day they seem to be creeping back and this worries me as it probably means the swelling hasn't entirely gone down and this would be the first thing I…