DAFFIE's blog

  • I am so angry

    FormerMember
    FormerMember
    A week ago, when G. went for his appointment at the respiratory clinic, I was horrified to see a gaggle of smokers clustered round the entrance.  I was furious that a terminal lung cancer patient should be forced to walk through a cloud of cigarette smoke to enter the clinic. I complained to a lady on the PALs desk who promised to speak to the clinic manager, and call me back.  A week passed, no reply, so I rang ask what…
  • Good News

    FormerMember
    FormerMember
    G. went for his three-month check today.  He only sees a respitary consultant now, the oncologist wrote him off, literally as soon as the chemo fininshed. I say check, but it was a very cursory affair.  No scans or x-rays, not even a weighing this time.  The verdict that he is still doing well was based solely on how well G. looks, a quick listen to his chest, and a couple of questions about his appetite. Back in another…
  • Jokes and all

    FormerMember
    FormerMember
    I have just caught up with today's blogs. From the heated comments, is seems more than a few feathers have been ruffled. It is encouraging to see that so much good sense has prevailed and if anything positive can result from the sorry mess, it is that we all need to be sensitive to others' feelings when posting on the site. I first posted almost a year ago, in the depths of despair when my husband was given a terminal…
  • Treatment in Germany

    FormerMember
    FormerMember
    Just back from Frankfurt where my husband had treatment for Mesothelioma. After a course of chemo in the UK, left him in remission, his oncologist told him "no further treatment, NHS or private is available here so make the best of what time you have left". Six months on, he is still in perfect health, so when we found a reference to a new method of giving chemo being done at Frankfurt University, and producing very…
  • counselling, or lack of

    FormerMember
    FormerMember
    Intested to see the earlier blog asking about counselling. In this part of the Midlands, none is available. Our GPs are very supportive, but we really don't like bothering them unless there is a medical reason. Even though they show genuine concern , they can only offer sleeping tablets and anti-depressants. The local cuncil run carers association is only concernd with helping carers get benefits. I did ask at the…