Community News - Macmillan Online Community

What Community members wished they had known before surgery

In the latest of our new series of blogs sharing hints and tips from members, we asked members of the Online Community, "What do you wish you had known before you had surgery?" Members shared personal experiences alongside the questions they asked, practical tips and some reassuring messages. This blog features conversations about a range of different surgeries that may be relevant to you. There is also some general advice to help you prepare for surgery and appointments. Click on the blog headings to help you navigate the different sections in the blog. Table of Contents Being prepared and recovery Hysterectomy TURP surgery Tracheostomy, Laryngectomy and bypass tube Thyroid surgery Cystoscopy Laparoscopic anterior resection Breast cancer surgery Skin cancer surgery…

Megan- Online Community Team
New Dates for 2026 - Local Cancer Community Meet-ups

It's 2026 and we're back with all-new dates for your diary! If you're in Birmingham, Bradford, Manchester, Prestatyn, Preston, Rochester, Washington, or Watford... we're delighted to announce even more opportunities to make new friends face-to-face. These in-person events intend to build supportive communities of people local to the areas they're hosted in. To avoid confusing them with our Online Community, we refer to these events as 'Local Cancer Community Meet-ups' in this blog. If you would like to discuss attending this event with other members of the Online Community, please don't forget that our Community Guidelines still apply. The Private Messaging system is a safer way to discuss specific meet-up plans with friends on the forum. Please see our guide to Private Messages and Friends…

Matthew - Online Community Team
Mike and Steve talk about the Online Community

Steph - Online Community Team
Accessing support during the festive season

This blog includes information about the support you can access over the festive season. This time of year, there are many celebrations taking place, and it’s often a chance to spend quality time with our loved ones. If you need a break from the festivities or are struggling with your emotions, we are here to help. With many support services closing for the holidays, we want to make sure you know how to access cancer support when you need it. “I do hope you can get the help you want - it's hard, especially at this time of the year.” Community member, Family and friends forum Support from Macmillan Support from a medical professional 24-hour helplines and webchat services Support from the Online Community Support from Macmillan The Macmillan Support…

Megan- Online Community Team
Staying in the present at Christmas: how I coped with each 'last time'

This blog was originally published in December 2022. It has been updated by the original author to include their most recent experiences. When a loved one has an incurable cancer diagnosis, it can be hard to avoid thinking about what events might be 'the last time'. The last holiday season. The last birthday. The last anniversary. Macmillan and the Online Community are both here to help you through what may be the hardest days and weeks of the year. Wee Me’s husband was diagnosed with a Glioblastoma brain tumour in September 2020. She has previously shared her experience as a carer and family member on Community News. In today’s blog, Wee Me is talking about how she’s learned to navigate and cope with those potential 'last times'. “My husband’s initial prognosis in September 2020 was…

Matthew - Online Community Team
What do you wish you had known before living with a stoma?

Our new mini blog series asks the question, ‘What do you wish you had known?’ In this latest blog, the Online Community team ask community members with different lived experiences what they wish they had known about Ileostomy, colostomy and stomas. The blog includes questions you might want to ask, practical tips, and help with managing anxiety before appointments. It also includes reassuring messages about living with a stoma. Visit the ‘What do you wish you had known before living with a stoma?’ forum to join the discussion. Emotional support when living with a stoma For some people, there can be a mixture of emotions when they are told they will be given a stoma as part of their treatment. You will find lots of friendly peer support in our Online Community. It can be comforting…

Megan- Online Community Team
Online Community downtime: Monday 1st Dec 10:30 pm -Tues 2nd Dec at 9am.

There is some planned maintenance taking place on Macmillan’s website overnight on Monday 1st Dec from 10:30pm. During this time the Community will experience some downtime. This means that members will not be able to log in, or join the Online Community, between Monday 1st Dec at 10:30 pm-Tues 2nd Dec at 9am. We know how important the Community is as a source of support for our members, so we will do our best to ensure the site is not unavailable for any longer than necessary. Please know that while the site is down you will not be able to create an account, log into the site or post, however you will still be able to view the Community and read posts and discussions for support. We understand that this may impact members who rely on the Online Community for peer support. If you need…

Moderator - Macmillan Community
Macmillan Community Breakfast with Chef & Brewer

We are delighted to share with you all a lovely offer from Chef & Brewer pubs this December. They are offering a free breakfast for you and a plus one – as we know turning up to things on your own can be daunting. There are 10 places per every Chef & Brewer site. This is a wonderful chance to connect with others, share stories, and enjoy a relaxed festive morning together. Chef & Brewer are part of the Greene King group, you can read more about the partnership with Macmillan here. The sign up is really simple: Visit the Chef and Brewer website and enter your postcode to find your local pub and select ‘Book a Table’ Choose Friday 5 December at 10:30am for your reservation (this is the only day and time the offer is available) Set the number of Adults to ‘1’ or ‘2’ (if bringing…

Megan- Online Community Team
What I wish I had known about chemotherapy: stories from Macmillan’s forums

Our new blog mini-series asks 'What do you wish you had known? ’ about cancer treatment before you had started it. People in the Macmillan Online Community are sharing experiences and tips about their cancer treatment and situations. This blog focuses on chemotherapy. Online Community members tell us that hearing about other people’s experiences of treatment can make a big difference to them. Especially when they’re feeling unsure about what to expect. Visit the chemotherapy forum , where members talk about what they wish they’d known before starting treatment. Everyone’s experience of chemotherapy is different “Some great advice here, I think that the key thing is that our experience of cancer is going to be different, and therefore our experience of chemo will also be. There are some…

Dylan - Online Community Team
What do you wish you had known before diagnosis? The Online Community helps.

Our new blog mini-series is based on a question ‘what you wish you had known’. The blogs feature different cancer treatments or situations you might be facing. We’re bringing the Community together to share hints and tips. Today we’re encouraging the sharing of your experiences of diagnosis. We know how helpful it can be to hear from someone who has been through it themselves. If you are facing a cancer diagnosis we hope this blog will help you find the suggestions you need. Everyone’s diagnosis journey is different – but some advice helps us all "I'm glad I got advice here about making lots of notes and asking lots of questions. It's helped me feel in control." - Community member, Prostate cancer forum “Things will get easier when you know what you’re dealing with and what your treatment…

Steph - Online Community Team
“It is a juggling act being a cancer patient and a parent.” – Priyanka’s story

Priyanka was diagnosed with triple negative breast cancer at the age of 36 in 2022. Priyanka lives in Aylesbury, with her husband, Manoj and two daughters, Keya and Shriyana who were 4 years old and 2 years old at the time of the diagnosis. Priyanka is a qualified teacher. Since, being diagnosed with cancer, she has gone on to become a life coach for children, supporting them through life’s challenges. Also, a published author, Priyanka has penned a heartfelt children’s book, When Mummy Had Cancer. Priyanka’s story Your world falls apart when you hear the words, you have cancer. Mine did too! You automatically think it’s a death sentence. When you have two young children, it’s terrifying. My first reaction was, what will happen to my girls? I want to be there to see them grow up. Experience…

Megan- Online Community Team
Local Cancer Community Meet-ups - New Dates, More Locations!

Macmillan's 'Cancer Community Meet-ups' program has been extended. This time, we don't just have new dates... we also have more locations! Are you in Birmingham, Bradford , Preston, Rochester, Washington, or Watford ? Do you fancy chatting face-to-face with other people affected by cancer? If so, we're delighted to announce even more opportunities to make new friends. These in-person events intend to build supportive communities of people local to the areas they're hosted in. To avoid confusing them with our Online Community, we refer to these events as 'Local Cancer Community Meet-ups' in this blog. If you would like to discuss attending this event with other members of the Online Community, please don't forget that our Community Guidelines still apply. The Private Messaging system is…

Dylan - Online Community Team