Community News - Macmillan Online Community

Catching up with the Kidney cancer forum

Here on the Online Community, there’s lots of different forums where you can find support and talk to people who may be impacted by a similar diagnosis. Ahead of Urological Cancer Month in September, we’re catching up with recent conversations in the Kidney cancer forum and exploring the ways people have supported each other. If you are affected by a different type of urological cancer, remember we also have a Bladder cancer forum , Prostate cancer forum , Testicular cancer forum and Penile cancer forum . Let’s take a look at some of the common topics and conversations that have been happening recently in our Kidney cancer forum. If you’d like to respond in any of these conversations, just follow the links under the quotes. Coming to terms with a diagnosis A new diagnosis can be shocking…

Eliza -Online Community Team
Chemotherapy support: Tips, discussions, and expert advice

Starting or undergoing chemotherapy can be daunting, and the side effects can be tough to deal with. Whether you're new to treatment or looking for ways to manage its challenges, you're not alone. In this blog, we’ll highlight some of the discussions in our Online Community, hints and tips shared, as well as expert guidance. Hints and tips from a Community Champion In 2021, Irishgirl16 (a Community Champion) wrote a popular blog post sharing things she wished she'd known before starting chemotherapy. This blog has helped many Community members over the last 3 years. Her tips cover general preparation, managing sickness, dealing with hair loss, and more. If you’d like to read her full list of helpful suggestions, please click the link below: Chemo Side Effects - Hints & Tips Ask A Nurse…

Dylan - Online Community Team
Tell us about your perfect summer- This or that quiz

We want to know what you consider a perfect summer. From ice lollies to sunsets on the beach, complete our summer 'This or That' quiz. How to play the interactive quiz Use the voting buttons to choose your answer from the multiple choices shown. You are welcome to answer all questions or just a few. Once you have voted for your answer, you will be able to see how many others chose the same answer as you. Quiz We hope you had fun doing the above quiz. Why not share your summer plans with us in the comment box below.

Megan- Online Community Team
“Grief comes in waves”: Coping with the loss of a partner

Many Community News readers may have followed Wee Mee ’s story. Community Champion Wee Me has written several articles about her experiences as a carer for her husband , who was diagnosed with a Glioblastoma brain tumour in September 2020. In today’s blog, Wee Me is sharing a very personal look at her experience and thoughts about loss and bereavement. “I have chosen to view life over the past nine months since G peacefully passed away as a time to heal rather than a time to grieve.” It’s been a while since I last wrote a Community blog. The topic for this one has been on my mind for a while but I couldn’t find the right words to articulate my thoughts. As many of you know, I supported my late husband G through the three years of his Glioblastoma journey. Any cancer journey is tough…

Eliza -Online Community Team
A day in life as a Macmillan Telephone Buddy- Carol’s experience

Carol, one of the Macmillan Buddy volunteers is sharing her experience and inviting us into a usual day as a Macmillan Buddy. Carol also tells us why she signed up to be a Macmillan volunteer and what the role looks like day to day. If you are considering signing up for support from a Macmillan Buddy or signposting someone to this service, this blog will be useful for you to read. Carol's experience My name is Carol and I’ve been a Telephone Buddy for several years. Before the pandemic, I volunteered at my local Macmillan Centre but, when it became impossible to see patients and families face to face, I applied to be a Telephone Buddy. The Macmillan Buddy Service provides emotional and practical support to people living with cancer for up to 12 sessions. To receive this support, anyone…

Megan- Online Community Team
Accessing peer support in a different way- Macmillan Buddies: what is it and how to get support

Here on the Online Community, we see every day how helpful if can be to access peer support and connect with your online friends who share similar experiences. Sometimes people look for face to face connections and support which is what the Macmillan Buddies service can provide. Macmillan Buddies is a fantastic resource for supporting people with cancer and Danny, one of Macmillan’s Volunteering Delivery Leads, is sharing some information with us today about how the Macmillan Buddy service can support you. Read this blog to better understand the support they can offer and how to submit a referral. Going through the cancer journey can be a scary and sometimes lonely time. It can be hard to talk to family and friends about how we are feeling and difficult to absorb all the information being…

Megan- Online Community Team
Peer support and cancer: reflections from a Community Champion

Receiving a cancer diagnosis can be overwhelming, and may leave many feeling lost. Peer support can be a lifeline, offering comfort, guidance, and hope. We recently reached out to some of our Community Champions to share their views on peer support, and their experiences in Macmillan’s Online Community. In honour of Head and Neck Cancer Awareness Day (27/07), we are going to hear from Beesuit in this blog. She has been a Community champion for 3 years, helping us keep the Head and Neck cancer forum safe and supported. In this blog, Beesuit shares some experiences and wisdom on the importance of peer support, memorable moments in the forum, and invaluable advice for those navigating their cancer journey. The importance of peer support for those affected by cancer “You have Cancer.” You…

Dylan - Online Community Team
Catching up with the Soft Tissues Sarcoma Forum

A cancer diagnosis can have a huge impact on you and your life, whether it’s your diagnosis or a loved one’s diagnosis. When you are diagnosed with a rare cancer, you may feel even more isolated. It can really help to find other people who understand how you feel and may have been through a similar experience. As part of Sarcoma Awareness Month this July, we want to highlight the Soft tissues sarcomas forum . This is a safe place to talk to other people, share experiences and find support. We want to help you find support if you or a loved one are impacted by soft tissue sarcoma. In this Community News blog, we’re going to feature some recent discussions from the forum and show you the topics that members talk about. Remember you can click the links underneath each post to go to the discussion…

Eliza -Online Community Team
Check-up appointments after endometrial cancer treatment- Jane's story

Jane is recovering from Endometrial Carcinoma Sarcoma and is one of our Community Champions. She shares her experiences to help others who are on a similar journey. Jane has kindly put together this blog to share her recent check-up experience in the hope that it will reassure those who are about to undergo one. "My cancer was endometrial carcinoma sarcoma 1b Grade 3 with LVSI. When active treatment ends for Endometrial Cancer , it is normal for regular check-ups to be scheduled. There can be some variation between hospitals and what may happen due to different diagnoses, stages, grades, and treatments, but this is my experience. I had a total laparoscopic hysterectomy with bilateral salpingo-oophorectomy . This was followed up with carboplatin and paclitaxel chemotherapy and external beam…

Megan- Online Community Team
Cervical Screening Awareness Week - how the Online Community can help

It's Cervical Screening Awareness week (17-23 June 2024) and in this recent article Macmillan have answered some frequently asked questions about cervical screening. With nearly 1 in 3 not attending their cervical screening test we also want to share where to find information and support if you’re worried about cervical screening or your screening results. It can be helpful to share any worries you have around cervical screening. You could talk to someone you know, to your GP or practise nurse. You can also chat anonymously with people here on the Online Community. Many Online Community members have talked about their fears around cervical screening, especially when they have been referred for further tests. "I had a routine smear this morning. After the nurse had finished she said…

Steph - Online Community Team
Super Surgeons- A Chance at Life

Did you watch series one of Super Surgeons on Channel 4? If so, you may be interested to hear that series two, Super Surgeons - 'A Chance at Life' , airs tonight on Channel 4 at 9pm. Macmillan is partnering again with Channel 4 for series 2 of the docuseries "Super Surgeons – A Chance At Life". The series follows patients having ground-breaking surgery at The Royal Marsden NHS Foundation Trust in London. Each of the hour-long episodes highlights the impact their cancer diagnosis has on all areas of their lives. The series features audio clips of calls to our colleagues on the Macmillan Support Line . You can watch the episodes on Channel 4 at 9pm on Tuesdays, from 18 June to 9 July. Or you can catch up anytime on Channel 4's on demand service All 4 . Also featured in the series are short…

Megan- Online Community Team
Support when you come home from hospital

When you come home from hospital after cancer treatment or surgery, you may need ongoing support. It can be hard to know what to expect. Recovery and the support you need at home can look different for everyone. Here in today’s blog, we’re sharing tips and experiences from Online Community members and helping you find the right support. Help from your hospital, GP or medical team Our webpage Going home from hospital talks about what to expect when you’re discharged from hospital. This includes support from your healthcare team to put a plan in place. This webpage also talks you through needs assessments, care plans and what your discharge plan may look like. Before you leave hospital, you may find it useful to use our hospital discharge checklist (PDF) – Find out more about this online…

Eliza -Online Community Team