Community News - Macmillan Online Community

Cancer and the Menopause: watch our Instagram Live with the Titty Gritty

Whether it's early menopause due to treatment, or going through menopause whilst living with cancer, menopause and cancer is something we often see being discussed on the Community. From hot flushes to mood swings, brain fog and fatigue, our members have been sharing their experiences and offering tips and support to one another. To help raise awareness and break down taboos surrounding the menopause, this Friday, 3rd February ahead of World Cancer Day on 4th February, Macmillan’s National Clinical Adviser Dr Hannah Tharmalingam will take part in an Instagram Live event with cancer campaigner and broadcast journalist Helen Addis. Known to her followers on Instagram as @thetittygritty , Helen is dedicated to raising awareness around cancer, following her own experience of breast cancer. …

Ellen - Macmillan
Catching up with the Kidney cancer forum

Here on the Online Community, there’s lots of different forums where you can find support and talk to people who may be impacted by a similar diagnosis. Ahead of Urological Cancer Month in September, we’re catching up with recent conversations in the Kidney cancer forum and exploring the ways people have supported each other. If you are affected by a different type of urological cancer, remember we also have a Bladder cancer forum , Prostate cancer forum , Testicular cancer forum and Penile cancer forum . Let’s take a look at some of the common topics and conversations that have been happening recently in our Kidney cancer forum. If you’d like to respond in any of these conversations, just follow the links under the quotes. Coming to terms with a diagnosis A new diagnosis can be shocking…

Eliza -Online Community Team
Allan’s story- living with oesophageal cancer and a feeding tube

Allan lives with his best friend in Eastbourne and shares his personal experience with Oesophageal cancer in this blog. He now has a feeding tube and is passionate about helping others who may also need similar treatment. In 2016 my right leg became blocked, and I couldn’t walk for long. After various visits to the hospital, it was decided for me to have a Femur Tibia Bypass. My leg was blocked from the groin to the ankle. I had 90 staples fitted and was left with a scar all down my leg. In 2018, lung cancer was found in my right lung, and then I was diagnosed with cancer of the Oesophagus in the same year. Regarding my cancer of the Oesophagus, I had trouble swallowing and had a massive bleed in the stomach. I attended the hospital on various occasions during 2017 & 2018 which led me to…

Megan- Online Community Team
What you wish you had known – cancer and farming communities

As part of Macmillan’s work with farming and rural communities the Online Community team have been working with The Farming Communities Network (FCN). You can find more information about the partnership in Macmillan's blog here . Macmillan are committed to making cancer care fairer for everyone. This includes making sure that everyone has access to the right cancer support and encouraging people to seek help sooner. We want to make sure that the support available in our Online Community reaches people in farming and rural communities. To start the conversation, we have asked people from Farming Community Network what they wish they had known when they have been affected by cancer. Advice for farmers, from farmers living with cancer “For many people, speaking with other farmers can be…

Steph - Online Community Team
Wenda’s Story. Cancer and Afro hair care after chemotherapy

Image above: Wenda in 2026 Wenda AKA Sonia101 on the Online Community was diagnosed with breast cancer in 2023. She wrote a short memoir about her cancer journey to help inspire others with breast cancer. The book “Faith over Cancer” focuses on Wenda’s persisting faith in God throughout her cancer treatment, including surgery and chemotherapy. As part of her memoir, Wenda also shares her experiences of losing her afro hair following chemotherapy and afro hair care following regrowth. Wenda told us she found it more difficult to find information about afro hair and cancer treatment. Macmillan want to make sure we offer cancer support relevant to you, whoever you may be. In this Community News Blog, we are sharing excerpts and photos from Wenda’s memoir, sharing her experience of hair loss…

Steph - Online Community Team
What do you wish you had known before living with a stoma?

Our new mini blog series asks the question, ‘What do you wish you had known?’ In this latest blog, the Online Community team ask community members with different lived experiences what they wish they had known about Ileostomy, colostomy and stomas. The blog includes questions you might want to ask, practical tips, and help with managing anxiety before appointments. It also includes reassuring messages about living with a stoma. Visit the ‘What do you wish you had known before living with a stoma?’ forum to join the discussion. Emotional support when living with a stoma For some people, there can be a mixture of emotions when they are told they will be given a stoma as part of their treatment. You will find lots of friendly peer support in our Online Community. It can be comforting…

Megan- Online Community Team
Online Community downtime: Monday 1st Dec 10:30 pm -Tues 2nd Dec at 9am.

There is some planned maintenance taking place on Macmillan’s website overnight on Monday 1st Dec from 10:30pm. During this time the Community will experience some downtime. This means that members will not be able to log in, or join the Online Community, between Monday 1st Dec at 10:30 pm-Tues 2nd Dec at 9am. We know how important the Community is as a source of support for our members, so we will do our best to ensure the site is not unavailable for any longer than necessary. Please know that while the site is down you will not be able to create an account, log into the site or post, however you will still be able to view the Community and read posts and discussions for support. We understand that this may impact members who rely on the Online Community for peer support. If you need…

Moderator - Macmillan Community
Getting support when living alone with cancer

Having a cancer diagnosis can affect every aspect of someone’s life. Living alone with cancer leaves many people with added obstacles to getting the support they need. Whether this is physical support and care, to help with daily tasks, or emotional support and guidance through the most challenging of times. The Online Community is here for anyone affected by cancer to find support from people who understand. Recently, we asked members of the Community about their experiences of living alone with cancer , the challenges they face and how they have coped or adapted to these challenges. This blog brings together what they have shared with some added information that we hope you find useful. Emotional effects of living alone with cancer Members spoke about the emotional challenges faced…

Wayne - Online Community Team
How do you balance Ramadān and living with cancer?

For many people, Ramadān is a time of reflection, faith, and connection. When you’re living with cancer, this month can also bring questions, adjustments, and mixed emotions. You may be wondering how fasting fits alongside treatment, recovery, fatigue, or medication - or how to stay connected to Ramadān if fasting isn’t possible this year. This blog brings together practical guidance and shared understanding, shaped around the experiences of people in the Macmillan Online Community. What is Ramadān and why is it relevant to my cancer experience? Ramadān is the ninth month of the Islamic calendar and is observed by Muslims worldwide through fasting, prayer, and reflection. Fasting from dawn to sunset is an important part of the month for many, but Ramadān is also about intention, compassion…

Emma - Online Community Team
Private Messaging Update

Good morning everyone. We just wanted to let you know that our private messaging function is up and running again. We know how important this area is to our members. Not only as a way of keeping in touch privately with your friends, but also as a method of contacting our team for support. We are so sorry for the inconvenience and would like to thank you for your patience. There is some useful step by step guidance and short tutorial videos in our Help Pages to help you send private messages. As always, our team is available to support you via private messaging the Moderator account or via email community@macmillan.org.uk . Please do not hesitate to get in touch. Best wishes Rebecca, Meg, Matt, Dylan, Steph, David, and Syed Online Community Team.

Moderator - Macmillan Community
Cancer, self-advocacy and pre-existing health conditions on the Online Community

Our forum members share experiences of self-advocacy, pre-existing health conditions and variations in cancer care. Self-advocacy means speaking up, asking questions, and making informed decisions, whatever stage you're at. Managing your own healthcare can be even more difficult if you have other health conditions as well as cancer. And there are unacceptable variations in cancer care across the UK. This means not everyone gets the same experience, depending on who they are and where they live. Learn how Online Community members navigate these issues. “I have inflammatory breast cancer and was told the only options was non skin sparing mastectomy with a year long wait for reconstruction, after being referred to another hospital despite being told by the previous hospital I couldn't have…

Steph - Online Community Team
Meet Kirsty Part 2, diagnosed with breast cancer alongside an existing health condition

Last month , we introduced you to Kirsty to share her story about coping with a breast cancer diagnosis alongside other long-term health issues. Kirsty described living under the shadow of acute Ulcerative Colitis for 21 years before finding a lump in her breast in April 2024. In Kirsty's story, she describes with candid honesty and humour how she dealt with tests for cancer whilst managing relationships with her loved ones. In this second part of two blogs telling Kirsty's story, we will continue to share Kirsty's experience as she told it to us. Kirsty's story, continued. "I was ultimately lucky enough to have what I call 'the good breast cancer'. That is a thing. My sister had the good one too and I can’t believe how incredibly fortunate we are. Because even though breast cancer…

Steph - Online Community Team