Community News - Macmillan Online Community

'I honestly don't think I would be here now if I wasn't told about this site' What the Community means to me...Vol 2: Johnty and Popgate

Today we have the second instalment of our ‘What the Community means to me…’ series. This series highlights just how much support, friendship and kindness is shared on the site every day. Today we have two members, and Popgate sharing their stories and discussing what it means to them to be on the site. Why not take a moment to read through? Missed our first instalment? You can click here to read tvman 's story. Johnty's story: 'I was diagnosed 17 months ago with a rare incurable blood cancer and for the first year I coped all by myself, but as my disease has progressed and is now terminal, I wanted to create a support network for myself. The Macmillan forum has come to play a big part in my emotional well being. "It has meant so much to me to feel useful again..." I have taken all…

Former Member
Talking about cancer - Vol 1 - Debbie

Speaking about a cancer experience can help you and others, here on the Community the power of shared experience is all around us: ‘It really is reassuring to know others have trodden the path I am fearing to tread… It makes me feel I am not alone in this.’ - mamachimp Thank you for sharing your personal story…I’m feeling much more supported and not alone. Thank you so much for taking the time to sharing your thoughts, I find them incredibly motivating.’ - Jatz But what about sharing your experiences more publicly? Today we are starting a new miniseries about how some of our Community members found speaking to the press about their cancer experience. Debbie is our first guest blogger of the series and is sharing her experience of speaking to ITV Channel Island News about her Bowel cancer…

Former Member
Pancreatic Cancer Awareness Month

Did you know that November is Pancreatic cancer awareness month? Around 9,600 people are diagnosed with pancreas cancer in the UK each year. Here in the Online Community, the “Pancreatic cancer” forum has over 2400 members. This November, we wanted to shed light on the amazing support they offer 365 days a year. In 2020 alone, the “Pancreatic cancer” forum has had over 13 million views. Across 2019, members posted 1192 replies to posts in the group. That’s 1192 offers of support, sharing experiences, and care. Our members are here every day, to reassure anyone with who has been diagnosed with Pancreatic cancer, that they’re not alone. “…rest assured on this forum you will never be alone and i found the cancer nurses/doctors are always happy to discuss any concerns you may have” Kevatvinegarhill…

Eliza -Online Community Team
LGBT+ History Month - How can you get involved?

This LGBT+ History Month, we first want to acknowledge that it’s not enough to have one month to highlight, listen to and learn from LGBT+ people and their experiences. Here on the Online Community, we aim to provide a place to for everyone affected by cancer to find support 365 days a year. We want to do everything we can to ensure the Online Community is as helpful and supportive a place as possible. Macmillan’s “Emerging Picture” report acknowledges how the needs and experiences of LGBT+ people affected by cancer can be very different. It highlights how LGBT+ people who are diagnosed with cancer can have poorer patient experiences. The report also explains how it can be difficult for LGBT+ people to find accurate and tailored information and support. For example, the NHS released information…

Eliza -Online Community Team
Cancer & me 35 years on - International Women's day

Today marks international women’s day, a day where we celebrate the social, economic, cultural and political achievements of women. It is also a day to highlight women’s issues and rally for gender equality. Here at Macmillan we are dedicated to supporting anyone who has been affected by cancer and champion for better cancer support for all. Hearing and listening to the experiences of everyone is vital in doing this. In honour of International Women’s day, we are pleased to bring you a special edition of Willo’s blog series ‘Cancer & me 35 years on’. Willo, an artist who was diagnosed with Anal cancer in 1986 while living in Zambia, has been sharing her experience of life post diagnosis in her blog series with us. After reading today’s blog, in which Willo talks about finding confidence…

Former Member
Respecting everyone on the Online Community

Cancer can often seem to be linked to your gender. It can be easy to make assumptions that only women get womb cancer, or only men get prostate cancer. When chatting to others on the Online Community, sometimes it might feel easy to presume who someone is due to their or their loved one’s diagnosis. Anna, Macmillan’s LGBT+ Network Lead, is here to talk about why it’s important not to make assumptions when talking to others online, and how this can help our Community cancer forum to be a welcoming space for everyone. Within this blog, we are talking about gender and biological sex being different. Your biological sex is what people are assigned at birth, and gender is what people identify themselves as. For lots of people, this is the same. However, it’s not the same for everyone. We hope…

Eliza -Online Community Team
Trans Day of Visibility 2021

Trans Day of Visibility, or International Transgender Day of Visibility, is a worldwide day to celebrate trans people and raise awareness. It’s difficult to know how many trans people in the UK and across the world are affected by cancer. However, we know that trans people may experience inequalities and difficulties in accessing the right healthcare treatment and support. It’s important to seek the right medical help and guidance if you have a symptom which is worrying you. Cancer Research UK have some online information around cancer screenings if you are trans or non-binary . If you’re interested in reading more about what being transgender means or finding some other resources if you’re transgender and affected by cancer, take a look at our Transgender Awareness Week blog . Whether…

Eliza -Online Community Team
Hair Loss - Information and Guidance

Image: Landscape of Yorkshire moors with dark clouds sitting over a valley on a spring day. On the Community team we often ask for your input or feedback, we want to make sure we’re listening to our members. In a recent newsletter we asked for you to get in touch with the topics you would like to see us write about. In today’s Community News Blog, we’re talking about a topic you asked for - hair loss. We know from many of our members’ comments that hair loss can be difficult to deal with, both physically and emotionally. "The hair loss was something I was absolutely dreading and absolutely heartbroken about." , Breast cancer forum "Main one for me is hairloss Hair loss was awful but I've learned to accept myself with short hair now. Take each day at a time." , Breast cancer forum …

Tom C - Online Community team
Bereavement Support in the Online Community

On this day of remembrance across the UK, we’re talking about bereavement support in this Community News blog. We understand that the death of someone close to you isn’t something you ‘get over’. It’s something you attempt to come to terms with. The Community can be a comforting place to share your feelings and get bereavement support from people who understand. “I just don't know how to shake this feeling, it’s been a year and it feels raw now, it didn't feel that way last year I think I was just in shock, but I can't help but feel so lost without her.” - Mario189, bereaved family and friends group. Learning to live with your grief can mean so many different things to different people. There’s no set period of time in which you should expect to ‘feel better’. “No one knows how…

Steph - Online Community Team
Transgender awareness week

Friday 13 th November to Friday 20 th November is Transgender awareness week. To support this, we wanted to make our members aware of our LGBT+ forum . Should you need support for living with a cancer diagnosis and identifying as Transgender, this is a safe place for you to access support. It is a place for you to speak to others who may have had a similar experience and who can understand how you may be feeling. What does Transgender mean? Transgender is a term to refer to all people who do not identify as their assigned gender at birth/and or the binary male/female gender system. Assigned Gender is the gender a person is given at birth and what gets written on their birth certificate when they are a baby. Gender identity is a personal concept of oneself as either male, female, both…

Megan- Online Community Team
The Community team are now available on webchat!

When looking round the Community recently you may have noticed a new ‘ Chat with us’ button appearing when looking at our ‘ Ask an Expert ’ pages or our ‘ Help section’ . This is Macmillan’s webchat feature and we are pleased to announce that the Community team are now available for you to live chat with for technical support Monday – Friday 9am – 5pm. What is webchat? Webchat is a service that has been available on Macmillan’s main website for a number of years. It is now available directly on the Community as well. Webchat allows anyone to connect with a member of our Macmillan specialist teams online and live chat with them for help and support. This means that you can message one of our specialists directly and receive live support from them as they answer your questions, or help…

Former Member
Cervical cancer Prevention week

This week is Cervical cancer prevention week. We wanted to share some information and resources to help answer many of the questions asked here on the Community. Please remember that you are welcome to post in our Ask a Nurse section or contact the Macmillan Support Line if you need some additional guidance. Very early stage Cervical cancer may not cause any symptoms. It is usually found and treated because of Cervical screening tests. What are the symptoms of Cervical cancer and when should you get tested? It’s good to know the potential symptoms of cervical cancer. Whilst many of them can be symptoms of other conditions it is important that we speak to our GP with any of the following; Heavier periods that you normally would have Vaginal bleeding between periods, after sex or…

Megan- Online Community Team

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

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