When good intentions hurt: Exploring Toxic positivity and conversations about cancer

5 minute read time.
When good intentions hurt: Exploring Toxic positivity and conversations about cancer

While positive affirmations can be uplifting, is it possible to have too much of a good thing? Is ‘always positive’ always helpful? In this blog, we’ll be exploring a concept known as ‘toxic positivity’, and how it affects those facing cancer. We'll also offer guidance on how to engage in conversations about cancer.

What is toxic positivity?

When talking about difficult or upsetting emotions, a natural reaction might be to try and counter those feelings with overly positive responses. Although the intention is to provide comfort, positivity can become toxic when it dismisses valid struggles and negative emotions. Emotions are complex, so we need to embrace the full spectrum of feelings, both positive and negative feelings.

Toxic positivity can be emotionally draining. The pressure to have a positive attitude all the time, can lead to feelings of guilt, shame, and isolation when negative emotions arise. We encourage members to express their emotions authentically and offer support without judgement.

Experiences of toxic positivity

Just over a month ago, a Community member wrote about their experience dealing with toxic positivity. Their partner had recently been diagnosed and they had just started telling loved ones.

After sharing their experience, this member asked the forum if anyone else had experienced toxic positivity and what they had done about it.  This allowed for a healthy discussion to take place, allowing members to share openly about their experiences.

“I am getting that at the moment, people telling me, 'But you look so well!’ Or ‘you will get through it as you are such a positive person’”

“I am still experiencing some toxic positivity almost 5 years on from my original diagnosis.”

“I just wish people would think before they speak and realise you have gone through a life-changing experience.”

“Ahead of me starting chemo, a friend passed on the advice of a friend of hers who has been treated for cancer. The advice was that you don’t have to be positive all the time - the drugs will work anyway. I think I’ll be taking that on board”

Click here if you would like to read the full discussion.

Supporting each other through ups and downs

Authenticity and vulnerability are cherished within our Community. By sharing our true feelings and challenges, we cultivate an environment where members can feel heard and understood. Together, we learn that it’s okay to have difficult days and that seeking support during these times is a sign of strength, not weakness. By talking honestly with others, we can improve our mental health and general well-being.

Have you experienced a form of toxic positivity? If so, you may want to pause reading for now and share some of your story with us in the comments below.

Positive thinking

Toxic positivity can be tough to deal with, for both caregivers and those living with cancer. In addressing this, we are not dismissing having a positive mindset, there is a balance that can be found. The key is being real with how you are feeling each day and considering what kind of support you may need.

In reply to the question about toxic positivity, one of our Community champions made some good points and offered the following advice.

“You will find that the ‘positivity’ language will keep coming along so you just have to have selective hearing. But at other times when you know people well and know that you can be open, do try to educate them in a supportive way…

… As for the positive mindset, there is a place for it. My Respiratory Consultant (I also have asbestosis) is a very good family friend and he maintains that of all the patients he sees those who are glass-half-full people do actually add to their ability to get through their treatment and come out the other end in a better place than those who don’t have that mindset - it’s not scientifically proven, just his observation from many years dealing with cancer patients.” 
Community member, Emotional support forum, Toxic positivity thread

Talking to someone who has cancer

How could you reshape your conversations to offer empathy and understanding to those living with cancer? When talking with someone who is navigating the challenges of cancer, it's important to approach the conversation with empathy. Here are a few things you can keep in mind when talking to someone living with cancer:

  • Do not feel you need to have answers. Listening can be enough. Even if it goes quiet for a time, try not to be afraid of the silence or feel you have to fill it.
  • Try to listen instead of thinking about what you are going to say next. When the person with cancer is talking, pay attention to what they are saying.
  • Try not to say that everything will be fine or encourage them to be positive. It can sound as if you are not listening to their worries. It is better to let people speak honestly about their feelings.
  • It may not be helpful to tell the person about other people’s stories. You may have heard about other people’s experiences with cancer. Cancer is different for everyone. They will get the information they need from their healthcare team.
  • Showing empathy is helpful. If they start to cry as they talk, you could say something like, ‘I can see how upsetting that is for you’. If you are close to them, you could simply sit with them and hold their hand.

For more advice and information, you can follow the links below.

Talking about your cancer diagnosis

It can be tricky talking to people about your cancer diagnosis and cancer treatment. How people react when you tell them about the cancer may depend on different things. Many people have no experience talking to or supporting someone with cancer.

Follow the links below for more information and practical tips:

Who can you talk to?

Think about who you usually talk with about important issues or difficult problems. This is probably the best person to talk to. This may be your partner, your closest friend, your eldest child, another family member, a work colleague, a counsellor or a religious leader. It may be somebody who is going through or has been through a similar experience.

Sometimes it is easier to talk with someone you do not know. You may feel less pressure to act a certain way. You may also feel safe knowing that they will not share the conversation with your friends or family.

If you feel this way, you could:

Anonymous
  • I was guilty of this recently, despite having a cancer diagnosis myself. My younger sister responded really badly saying" well I guess when I'm dying it will be my fault for not being positive enough" ouch.  Hard to know whether to comment at all. I try to pass on hope, as it is 16 years since my first surgery. And 10 since my second. But this is really useful on the thread . THANKYOU . Wishing you strength for the battle ahead.

  • I too am guilty of softening the blow to other people.  I try to be as positive a person as I can be and am definitely a glass half full type of person.  But sometimes that mask does slip, especially when I am on my own and the reality of all this hits me.  I do not mind other people telling me to be positive, that it will all be fine, stories from others they have known.  But as a few others have said I do not like being told I am brave, as Magmoo said, I didn’t jump out of the plane, I was pushed… I like this phrase.  I did get upset though at someone telling me my breast cancer was ‘a lesser one’ than her sister’s as my lump was only small and I was so lucky to only need surgery and radiotherapy.  I did reply though that I didn’t know it was a competition!  As far as I am concerned it doesn’t matter how large the lump is, what stage it is at or how many treatments you need, we are all in the same boat and have to fight it and support each other as best we can.  Sorry for the rant. But it really upset me.  

  • Hi  
    Thank you for commenting and sharing so honestly. That must have been really tough to hear coming from your sister. Im sure most of us here have been guilty of this at some point. It can be very easy to do when we are wanting to offer support and help a loved one feel better. It can be very difficult to know what to say or how to say it. In these situations, it can help to just hold back responding to what has been said, and just let them know that you are there for them during this tough time. It can help to take the pressure off, knowing we don't have to have all the answers and solutions. Simply listening and being present can have the greatest impact. 

    Im glad you have found the blog and comments helpful:)

    Best wishes,
    Dylan

  • Hi  
    Thank you for sharing some of your experience here. 

    Im sorry you were told that your breast cancer was a "lesser one". It is good that you called them out on that. As you said very well, it doesn't matter the type of cancer or stage, everyone needs and deserves support with whatever they are facing. Everyone's story is unique and includes different challenges with many up and downs. 

    Please don't feel you need to apologise for ranting. That's a big reason why the online Community is here. Its a safe, non-judgemental space for you to be honest and open about the negative experiences you have had. 

    Thanks again for sharing and being so open about what you have had to deal with. 

    Take care,
    Dylan

  • Thank you Dylan, that is why this site is such a support.