When good intentions hurt: Exploring Toxic positivity and conversations about cancer

5 minute read time.
When good intentions hurt: Exploring Toxic positivity and conversations about cancer

While positive affirmations can be uplifting, is it possible to have too much of a good thing? Is ‘always positive’ always helpful? In this blog, we’ll be exploring a concept known as ‘toxic positivity’, and how it affects those facing cancer. We'll also offer guidance on how to engage in conversations about cancer.

What is toxic positivity?

When talking about difficult or upsetting emotions, a natural reaction might be to try and counter those feelings with overly positive responses. Although the intention is to provide comfort, positivity can become toxic when it dismisses valid struggles and negative emotions. Emotions are complex, so we need to embrace the full spectrum of feelings, both positive and negative feelings.

Toxic positivity can be emotionally draining. The pressure to have a positive attitude all the time, can lead to feelings of guilt, shame, and isolation when negative emotions arise. We encourage members to express their emotions authentically and offer support without judgement.

Experiences of toxic positivity

Just over a month ago, a Community member wrote about their experience dealing with toxic positivity. Their partner had recently been diagnosed and they had just started telling loved ones.

After sharing their experience, this member asked the forum if anyone else had experienced toxic positivity and what they had done about it.  This allowed for a healthy discussion to take place, allowing members to share openly about their experiences.

“I am getting that at the moment, people telling me, 'But you look so well!’ Or ‘you will get through it as you are such a positive person’”

“I am still experiencing some toxic positivity almost 5 years on from my original diagnosis.”

“I just wish people would think before they speak and realise you have gone through a life-changing experience.”

“Ahead of me starting chemo, a friend passed on the advice of a friend of hers who has been treated for cancer. The advice was that you don’t have to be positive all the time - the drugs will work anyway. I think I’ll be taking that on board”

Click here if you would like to read the full discussion.

Supporting each other through ups and downs

Authenticity and vulnerability are cherished within our Community. By sharing our true feelings and challenges, we cultivate an environment where members can feel heard and understood. Together, we learn that it’s okay to have difficult days and that seeking support during these times is a sign of strength, not weakness. By talking honestly with others, we can improve our mental health and general well-being.

Have you experienced a form of toxic positivity? If so, you may want to pause reading for now and share some of your story with us in the comments below.

Positive thinking

Toxic positivity can be tough to deal with, for both caregivers and those living with cancer. In addressing this, we are not dismissing having a positive mindset, there is a balance that can be found. The key is being real with how you are feeling each day and considering what kind of support you may need.

In reply to the question about toxic positivity, one of our Community champions made some good points and offered the following advice.

“You will find that the ‘positivity’ language will keep coming along so you just have to have selective hearing. But at other times when you know people well and know that you can be open, do try to educate them in a supportive way…

… As for the positive mindset, there is a place for it. My Respiratory Consultant (I also have asbestosis) is a very good family friend and he maintains that of all the patients he sees those who are glass-half-full people do actually add to their ability to get through their treatment and come out the other end in a better place than those who don’t have that mindset - it’s not scientifically proven, just his observation from many years dealing with cancer patients.” 
Community member, Emotional support forum, Toxic positivity thread

Talking to someone who has cancer

How could you reshape your conversations to offer empathy and understanding to those living with cancer? When talking with someone who is navigating the challenges of cancer, it's important to approach the conversation with empathy. Here are a few things you can keep in mind when talking to someone living with cancer:

  • Do not feel you need to have answers. Listening can be enough. Even if it goes quiet for a time, try not to be afraid of the silence or feel you have to fill it.
  • Try to listen instead of thinking about what you are going to say next. When the person with cancer is talking, pay attention to what they are saying.
  • Try not to say that everything will be fine or encourage them to be positive. It can sound as if you are not listening to their worries. It is better to let people speak honestly about their feelings.
  • It may not be helpful to tell the person about other people’s stories. You may have heard about other people’s experiences with cancer. Cancer is different for everyone. They will get the information they need from their healthcare team.
  • Showing empathy is helpful. If they start to cry as they talk, you could say something like, ‘I can see how upsetting that is for you’. If you are close to them, you could simply sit with them and hold their hand.

For more advice and information, you can follow the links below.

Talking about your cancer diagnosis

It can be tricky talking to people about your cancer diagnosis and cancer treatment. How people react when you tell them about the cancer may depend on different things. Many people have no experience talking to or supporting someone with cancer.

Follow the links below for more information and practical tips:

Who can you talk to?

Think about who you usually talk with about important issues or difficult problems. This is probably the best person to talk to. This may be your partner, your closest friend, your eldest child, another family member, a work colleague, a counsellor or a religious leader. It may be somebody who is going through or has been through a similar experience.

Sometimes it is easier to talk with someone you do not know. You may feel less pressure to act a certain way. You may also feel safe knowing that they will not share the conversation with your friends or family.

If you feel this way, you could:

Anonymous
  • Thank you for your words. What you said makes sense as nearly everyone does it. I am having bereavement counselling. It’s early days but I will take every day as it comes 

  • Hi Dylan, I'd not heard the term “toxic positivity” before, but your blog makes a lot of sense and I love the suggestions you make to help people think about how they respond when talking to someone who has had a cancer diagnosis.

    Personally I do believe that a positive attitude and mindset is a factor in dealing with cancer, but the sweeping “you'll be fine, you're so positive” platitudes can be so very frustrating, especially for me if they landed when I was having a bad day or had some disappointing news. 

    I think we have to continue to talk much more openly about cancer diagnosis and treatment and raise awareness and slowly over time this will help build broader understanding.

    Great topic, thanks for sharing it.

  • What a brilliant article ! I've never heard the phrase toxic positivity but how true it is Many people have said to me "I know someone with cancer who is still here years later" Not helpful - everyone is different. Also I never talk about battles - it's not a war. I just want a peaceful and happy time doing what I want to do when I can and being kind to myself when I can't do things. My family are incredibly supportive and have seen me on good days and bad. luckily they are of the same mindset and let me take the lead 

  • Hi  
    Thanks so much for the feedback. It seems like a very popular topic and shows just how many people have experienced some form of toxic positivity while living with cancer. 

    Thanks for sharing some of your thoughts and experiences. That sounds like a great attitude and mindset to have. It sounds like you have a good balance, which I think is so important. You are able to have a positive mindset while being real about your negative emotions on a bad day. A healthy positive attitude will allow negative emotions to be expressed when needed, so that those emotions can be processed in a helpful way. Positivity can become unhealthy/toxic when it dismisses how we are truly feeling. This can result in negative emotions being supressed.

    Thank you for being part of the conversation and adding to our Community in such a great way:)

    Take care,
    Dylan

  • Hi  
    Thank you for the kind feedback.

    You have made a very good point there, everyone is different and needs to be listened to and understood. 

    Thank you for sharing about your attitude, that sounds like a very healthy approach. Its so important to be kind to yourself when you aren't able to do the things you want or need to do.

    It's great to hear that you have such a supportive family that allows you to take the lead.

    Thank you for taking the time to add to the conversation.

    Best wishes,
    Dylan