Story of the Month: Jennifer

2 minute read time.
Story of the Month: Jennifer

Have you ever felt misunderstood during your experience with cancer?

Here in the Online Community, we’re excited to launch a new series working with Macmillan’s Digital Storytelling Project, where people affected by cancer have created their own videos to talk about their experiences. We’re starting with Jennifer as our first story of the month for May 2022, also known on the Online Community as .

Jennifer has created a video to share her experience of receiving a cancer diagnosis as an autistic person. Her video is called ‘Take a moment’. She talks about her feelings of being misunderstood by medical professionals and the assumptions made about her. Jennifer also shares how her experiences have changed her perspective on both herself and how she wants to move through the world.

“I am simply not afraid of anything any more. I have become much more confident and I have found my voice and much more.”

Jennifer’s video has subtitles/closed captions. Hear her story by clicking on the video below:

“I talk today about my experience in the hope that others can benefit, that people do take a moment or even more to get to know the person sitting right in front of them.”

Jennifer shared her story through the Digital Storytelling project at Macmillan. Macmillan’s Digital Storytelling workshops support people affected by cancer to tell their stories in their own words. Many Digital Storytellers have found comfort and support from attending these workshops and sharing their story as a video. If you’d like to get involved, you can find out more about it on Macmillan’s webpage about the Digital Storytelling project.

Here in the Online Community, this is a safe place to share your story and find support. Connecting with others and talking about your experiences may help you to feel less alone in what you’re going through. Why not let someone in one of the Online Community groups know that you understand how they feel, or reach out to talk about how you’ve been doing?   

If you are autistic and feel you would like to access further support alongside Macmillan, the National Autistic Society are the UK’s leading charity for people on the autistic spectrum and their families. They provide lots of help and support on their website, including an online community.

We would like to thank Jennifer for sharing her story with us and the Online Community. How did Jennifer’s story make you feel? Could you relate to their experiences? Let them know in the comments below.

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Anonymous
  • Jennifer you are an inspiration.  I was diagnosed with kidney cancer in September 2020 having been sent to an and e with severely low bloods.  Wasn’t seen for 5 hours as it was heaving - doctor on duty sent me for a scan then at 2.40 early hours of the morning dropped the news in a busy impersonal a and e department that I had huge tumour!  He then left the cubicle and  it was then 3 hours later of being left on my own waiting and wondering before anyone came to take bloods and told me it was an extremely large tumour!  No one else came or explained anything - just left on my own in limbo feeling my world had ended.  Shouting inside please someone talk to me - tell me what will happen! No one did! 
    my initial journey trying to get treatment was awful - only because my daughter jumped up snd down and demanded a specialist see me that things started moving.  Again I was talked at not too - just how you felt! My wonderful surgeon agreed he would operate - 11 hour operation but I came through!  Sadly came back as a rare aggressive tumour 4 months later in the main vein to heart.  Felt like I was going to be written off again - until my surgeon battled for me to receive Immunotherapy.  The consultant there laid it bare - stage 4 possible it won’t work was very negative.  They started it snd I was lucky then to move to a different part of the country.  Consultant here bern wonderful - cancer centre amazing.  
    But it’s hard - you are talked to rather than someone sitting asking how you are, how you are coping, how it feels every 4 months to have  your ct scan - the awful worry whether it’s returned when you waiting two weeks for the results  If only someone would just take the time to listen - to ask - to show support with your battle-  that would inspire so many people to carry on!  My saviour is my walking - listening to birds singing enjoying the beautiful lakes and fells - just enjoying nature and most of all enjoying my life.  Hoping like everyone it doesn’t beat me - I’m determined to beat it!  

  • Hello Hopeful lady,

    Thank you for commenting on Jennifer’s blog and sharing your experience. I’m glad to hear that it sounds like you found Jennifer’s video helpful.

    I’m just going to tag Jennifer  so that she can see your comment.

    I hope you’ve been finding lots of comfort and support from the Online Community. Please feel welcome to get in touch with us in the Community team if you need any further help at all. You can get in touch with us over email to community@macmillan.org.uk.

    Best wishes,

    Eliza

    Macmillan Community team