New to the Online Community - some help in getting started

Hi Stu71 

I’m Steph and I’m part of the Online Community Team here at Macmillan. Welcome to our forums, where you can connect with people in similar circumstances.

I've posted your message into the Glioblastoma forum here so members will see it an can offer you some support. 

In case it’s helpful,  the video and written instructions above might help you get started on the Community. If you need further help, please do get in touch. 

There's also support available for you in the cancer type forums. If you need help finding the right forums, please do let us know. 

If you’re looking for additional expert support, please remember that the Macmillan Support Line  may be able to help. They’re available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.

Please do let us know if you have any questions or need further help with anything else. I hope the Community helps to show you that you are not alone and there is lots of support available for you. 

Hello,,

I am currently having radiotherapy for Prostate Cancer and have read that the side effects is diarrhoea

Which I experiencing at the moment.

Has anyone else has had the same.

i will speak tomorrow when at next session to see if anything can be done.

Thank you 

Hi Mikey2647

I'm Wayne from the Macmillan Online Community Team. May I wish you a warm welcome to the Online Community, I hope you are able to find the support you need. Apologies for the delay in getting back to you.

I'm sorry to hear of your diagnosis. Please know that Macmillan is here to support you every step of the way. 

You may find it helpful to join and post in the Prostate Cancer forum. We have also produced a short video, showing you a step-by-step guide on how to get started on the Community.

How to join a group

1. Go to the group you would like to join
2. Select 'Join' underneath 'Options'

How to start a discussion

1. Go to the forum you would like to post in
2. You'll need to be a member of the group before you post
3. Once you're a member of the group, select the '+New' button
4. Enter your subject title and your post
5. (optional) You can add tags to your post - this will help other members find your content e.g. if your post is about chemotherapy, you can add 'chemotherapy', 'chemo', 'treatment' as tags
6. Once you've finished your post, scroll down and select 'Post'
7. You'll then be taken to view your post

You can also contact a Macmillan Professional on our Ask an expert forum. Our experienced Cancer Information Nurse Specialists can answer questions about cancer treatments, side effects and more. Whilst you can also speak to our Information and Support Advisers who are here to answer any questions you might have. They can answer questions about the emotional, practical and financial impacts of cancer. The forum group is open from Monday to Friday. Once you have posted your question, a qualified Macmillan professional will respond within 1 to 3 working days.

I hope this helps but please do let us know if need any further support.

Kind Regards

Wayne (he/him)

Macmillan Online Community Team
Visit: Macmillan Online Community

My husband has refused more chemo

Hi this is my first post. My husband was diagnosed with grade4 glioblastoma in may. He has had an operation to remove as much as possible of the tumour and had radiotherapy and chemo. However he was due to have 2nd round of chemo and has said he no longer wants it. I am worried that it will reduce the time we will have with him but at the same time can understand why he doesn't want it. He has had seizures since the operation on 1st July and then again on Wednesday. I am really worried. I just wondered if someone can tell me what's happening.