Looking back at the Online Community in 2022

4 minute read time.
Looking back at the Online Community in 2022

We’re coming to the end of 2022 and as the new year approaches, we wanted to take some time to look back at what’s happened on the Online Community this year. This blog is a short overview of some Community highlights.  

The Online Community team would firstly like to thank all our members for the kindness and support that you have shown each other this year. There have been over 75,802 posts in our Community groups which shows the tremendous amount of peer support that can be found here.

We’ve had lots of new members join our Community in 2022 and the power of peer support grows every day in our Community groups. Connecting with others who share similar experiences can provide comfort and reassurance. There's spaces for loved ones and those living with cancer to find support 24/7. 

“Coming on here listening and talking to members was an absolute godsend I don’t know how I would have managed."
Community member, Anal cancer forum

"This site has been my lifeline, made some good friends who supported me, and me them. You can ask us anything, tell us you are scared, whatever you feel, tell us, as we have all been there."
Community member, Skin cancer forum

"You are not alone, there are so many lovely people on here. They helped me and my husband through our lowest points, with great advice and encouragement. So lean on us."
Community member, Oesophagus cancer forum

"It does help to offload on here. I am truly grateful for all the support. I can say things on here that I perhaps would be unlikely to verbalise physically xx"
Community member, Breast cancer forum

Welcomed new Community Champions to the team

We welcomed three new Community Champions to the team this year.

  ,  and  . Slight smile

We hope you’ll join us in saying thank you to all of our amazing Community Champions who dedicate so much of their own time to support members of the Community and help the Online Community team.

If you want to know more about the role of a Community Champion, you can read our Here’s to our Champions’ blog or reach out to the Online Community team by emailing Community@macmillan.org.uk

Online Community featured in Macmillan’s marketing campaign

You may have spotted the Online Community being featured in some of Macmillan’s marketing campaigns on social media. This is to help people find the Online Community sooner as we often hear how people wish they would have known about the site at the point of diagnosis or before.

Online Community marketing campaign post with text above the image of someone looking at a phone

Community improvements

This year we introduced some long-awaited enhancements to the site. Click the link to read our ‘All the details you need for the upcoming improvements blog. We made some key changes to some core functions of the site such as: 

Community News blog

The Online Community team published 99 Community news blogs in 2022, sharing a range of support information from cost of living resources to sharing personal stories. Click here to read our blogs and bookmark the Community news section. 

We introduced the digital storytelling project to the Community which includes short videos of people affected by cancer sharing their personal experiences. You can visit the latest blog post by clicking here and there are also links to the other digital storytelling project blogs at the bottom of the page.  

If you would like to be a guest blogger and share your personal cancer story with the wider Community, please do get in touch with the Online Community team. You can email community@macmillan.org.uk if this is something you would like to do, or if you have any questions bout being a guest blogger.

This year Macmillan’s Cancer information team started posting in their Online Community blog again to share trusted cancer information on the Online Community. You can click here to read more of their posts. 

Do let us know if there are any topics that you would like to see in our blogs as we value your feedback and ideas. 

We hope all our members will all continue to find lots of support here on the Online Community. The Community team would like to wish everyone all the best for the new year and if you need any support using the site, please don't hesitate to get in touch with us. You can email Community@macmillan.org.uk or send a private message to the moderator account.

Anonymous
  • well 2022 I couldn't believe having this diagnose latter part of the year . My work is important to me, and I have hopes to become a mature very mature apprentice with physiotherapy, in 2023  so with my

    partner and my very mature fur babies  I assumed all would be grand for our next few years.

    BUT!  Bowel cancer its a shocker this site support group has help with my dark days that I could not speak to my family and friends about now I can, i  am going through chemotherapy  at the moment tossing bits of my hair putting on weight, but I'm here and that's what im thankful for.

    so thanks to MM site to the support I've had from people on here.

    Debs XXX Here's to. 2023 

  • Hi  

    Thanks for commenting on the blog, it's Steph here from the Community team.

    I am sorry about your shocking diagnosis, however I am glad that the Community has been a good support for you throughout. I hope the chemo goes well and that 2023 has some much more pleasant surprises for you.

  • Prostrate Cancer started my second week of treatment.  Trying to

  • Hi Radiation 28 days,

    It’s Megan here from Macmillan’s Online Community team. It looks like a part of your message is missing as I can only see Prostrate Cancer started my second week of treatment.  Trying to”.

    If you’d like to reply to this post and share your message again, I’d be happy to help you find support. You’re also welcome to join the Prostate cancer forum and start a discussion should you wish to connect with others who are in a similar situation to yourself.

    In the Prostate cancer forum there will be people who are also having chemotherapy treatment and can share their personal experiences with you.

    Alongside speaking to other members in the discussion groups, there is the Ask an Expert section of the site. This is where you can post questions to our specialist Nurses, Financial guides and Support Advisers, and they’ll aim to respond as soon as they can. Usually within 2-3 working days.

    If you have any questions about your diagnosis or treatment plan for the Information Nurse specialists, you’re welcome to post a question in our Ask a Nurse section.

    Please keep in mind the Macmillan Support Line is also there to help you. The specialist teams are there to provide emotional, practical and financial support, even if it’s simply a listening ear you need. You can call the teams on 0808 808 00 00, 7 days a week from 8am to 8pm. The specialist teams can also be contacted by live webchat or email during the opening hours.

    I hope the above information is helpful the Community helps to show you that you are not alone and there is lots of support available for you. Please do let us know if you have any questions, or need help using the site. You can contact the Online Community team by sending us a private message to the moderator account or by emailing community@macmillan.org.uk.

    Best wishes,

    Megan
    Macmillan's Online Community team

  • Hi recently signed up as two recent malignant melanomas. The latest mole on my shin causing big problem with healing. First mole was a 1b and the leg one is a 1a so I’m counting myself lucky in what I’m dealing with. Having difficulty agreeing to further excision .