chat site /fight site

2 minute read time.

I now know what has been going on in chat this last week or so and i dont like it . I first came on the site earlly on this year after having just finished five months of chemo for AML. Had been talking to samaritans most nights just to stay sane .when i acme on at first i was a bit out of my depth as i had never been on a chat site before .

The folk on this site asked the useual qeustions what was i what did i have and then they started to help me by telling me what they had been through and how to cope with day to day living again . After a while i tried to help otjers in same situation and i think i did some. What no one ever did was to question my honesty as to weathr i was telling the truth about what i was going through. I have never done that either . ,We all know there have been a few of those . <nutters>who come on here to make trouble or are seriously disterbed and need treatment them selves They have all been found out by diferent means and are no longer on this site .What we have never done is totally dismissed some one for what they say on site just because we dont agree with it .

It seems to me that some on here seem to think they know a lot about all types of C well i dont i dont even know a lot about my own C never mind all the other types . I do know though that this bloody thing does efect different folk in different ways .Even AML i am a lucky one but two friends of mine on site and thier husbands are not and my heart goes out to them . When i was in hospital a friend of mine who i had known since school , his wife was in next iso room to me she went home before me in remission but unfortunatly only lasted six months and she passed away . when i wasan apprentice had a forman who had stomach cancer he was a blacksmith and he worked up to the day hedecided to go to hospitl then only after he had lost four stone and could not keep any thing down he went in they opened him up and sent him home he died a week later.

My own auntie died from bone cancer she did not even know she had it till she fell doown in Sheffield and broke her hip she died a few months later still carrying on as normal till broke her hip. I think this site should get back to doing the thing its meant to do help and suport those who come on here we will all be better for it . I can honestly say i owe my life to macmillon and this chat site and the friends i have found on here especially one my prop she knows who i mean so dont need to embaress her by telling you lot ha. I want to keep coming on but i must admit its getting harder all the time I may have to go to pms only and concentrats on cancer voices dont know yet lets get things back together eh!! still love you all

Anonymous
  • FormerMember
    FormerMember

    I have been going into the chat room since my mum was diagnosed on November 5th.  It was difficult at first as I didn't know anyone and it would have been easy to give up thinking that everyone else were friends but I perservered and soon got up to speed.  People were always welcoming and I've had a lot of help and support as well as a lot of laughs which are often a welcome release.  

    Last night it was extremely busy and even I, who've been on there for quite a few weeks now, found it hard to keep up.  As soon as I go on people say hi and ask how mum is and how I am.  I am very aware that new people could be put off by everyone seeming to know everyone else on there.  I always welcome people and ask how they are.  If they are new to me I point out that I've not met them before and ask what brings them here.  There were so many new faces last night that there was no way I could have kept up with who was coming in and out and I came off fairly quickly but I will be back in there today and everday.  If I found someone saying something unacceptable or if they questioned my, or someone elses honesty I would make it clear, there and then, that I wasn't happy.  I have never had a problem with any of the people I have met there, nor seen anyone say anything unacceptable, and I do now consider them friends who would instantly drop any lighthearted conversation if I said I was upset, needed support or advice.

    I am very upset that some people have been labelled as insensitive when I know them and have always found them to be very sensitive to peoples needs.  They are all there because they are patients or carers and enjoy meeting likeminded people.  I have been there when they have laughed together and when they have cried together.  

    Anyone new to chat needs to stick in there and give people time to get to know them and support them.  I would hate anyone to think that I'm part of a click and that I wasn't sensitive, supportive and helpful to them when they've needed it but it may not happen within the first 10 seconds you enter the room.  I've seen a lot of people come in and go out again almost immediately for whatever reason.

    I knew no one when I first went in but now I know a lot of people and any that I don't know I try to engage in conversation so that I can get to know them.  I truly hope this recent problem, whatever happened as I wasn't there, does not damage all of the good stuff that goes on in chat!

  • FormerMember
    FormerMember

    hi bad fairy , hope your ok this cold chilly afternoon....keep nice and warm....you know, i hate feeling suspicious of people, its because friends have been hurt most of all...for me i just ignore the threads i have doubts over....well i do 99% of the time...i dont like to see nice caring people get took for a ride as they have done in the past. think angela is right, just stay of the threads..yup chat needs 2 rooms ..i think someone tried to do a second room, only not enough people were on....

    i must admit when i go in chat the few times i have then its more for a nag and a laugh and an escape from serious stuff, but i do respond if someone comes in with a problem..if someone just came in when i was on and sat on the side they would think its a footy chat room as i jibber on about footy, or chat about everything BUT cancer...

    deff need to keep two rooms going...trouble is people dont allways realise there can be two rooms up and running, or even more.....think you can make your own room even....

    the new site though i wish it hadnt changed...thing is i can get around on here and i can use it.....but its not about me....some people just cant figure it out...thats why i wish the old sites had not changed, for those who cant work the new one out...

    in chat rooms hey we who have been in chat rooms on other sites know how people can be there to cause hassle or wind everyone up...i go in a hull city room and the amount of bloody leeds fans in there is amazing....bloody leeds...lol

    look after yourself bad fairy...talking of footy im off to the bookies...did hull city to draw 2-2 with bolton and the score was 2-2.....yeee haaa....i won a bet at long last.....

  • FormerMember
    FormerMember

    My hubby is now in the middle of his 4th year fighting stage 4 bowel cancer. I, as his sole carer, fell into a depression after the 3rd year of this fight. This site and all the people on it have helped me so much, and have pulled me back out. The people on Chat have been only wonderful to me. It is a relief to meet other people going through the same situation and to give and receive support, insight, and help with humour and grace. The few frauds that have surfaced have caused pain, and made people wary.  But there is so much good that has come from Chat, that I hope people will continue to use it.

    XOXOXO   Mo

  • FormerMember
    FormerMember

    On 24th November 09 my world fell apart, I was told I had breast cancer 6 core biopsys were done for testing.  A week later was informed I would need to have a mastectomy, my world fell apart, I was in a dream state, not coping on the inside but looking okay on the outside. Over the years I have lost my first born child at a month, then both my sons 23 and 24 to a very rare illness and during this my mother from cancer.  This to me was like putting the last nail in my coffin so to speak.  My mind felt it could not cope with anymore.  There seemed no justice in it at all.  I rang the Macmillan help line who were fab. was informed about the chat room and decided to give it ago. Being totally useless with computers it was hard getting around and still is for me.  Yes difficult to get going as everyone seems to know everyone.  I gave it a few goes and Thank God I Did, they have been my life line, helped to get me sorted out on the computer for a start. Given me time to harp on about my problems, been loving, caring, kind and oh so supoportive. I have since being on it found it  disturbing to realise that someone comes on who is not genuine. And find it sad that they have to do this to give themselves a kick out of life.I do not know all there is to know about a lot of the cancers or treatments only what I am going through but I do hope that In return iun my own way I have been giving back something to others.  Most of us are here because we need this be it for fun and laughter to brighten a dark moment, or to reach out for help and support.  I can say with all my heart that these folk on this site are more like family and I owe them all big time. We are only in this life time once so let us all use our time wisely.  Love you guys

  • FormerMember
    FormerMember

    I'm sorry to hear that there has been a problem in the chat room. I can't say I've noticed any bad feeling.

    All I can say is that in the short time that I have been visiting the chat room I have found nothing but support.Long may it continue.

    My family and friends have been a wonderful support but they don't know what to say to me beyond "How are you?" I know I can go into the chatroom and my cancer is out in the open, so to speak.