chat site /fight site

2 minute read time.

I now know what has been going on in chat this last week or so and i dont like it . I first came on the site earlly on this year after having just finished five months of chemo for AML. Had been talking to samaritans most nights just to stay sane .when i acme on at first i was a bit out of my depth as i had never been on a chat site before .

The folk on this site asked the useual qeustions what was i what did i have and then they started to help me by telling me what they had been through and how to cope with day to day living again . After a while i tried to help otjers in same situation and i think i did some. What no one ever did was to question my honesty as to weathr i was telling the truth about what i was going through. I have never done that either . ,We all know there have been a few of those . <nutters>who come on here to make trouble or are seriously disterbed and need treatment them selves They have all been found out by diferent means and are no longer on this site .What we have never done is totally dismissed some one for what they say on site just because we dont agree with it .

It seems to me that some on here seem to think they know a lot about all types of C well i dont i dont even know a lot about my own C never mind all the other types . I do know though that this bloody thing does efect different folk in different ways .Even AML i am a lucky one but two friends of mine on site and thier husbands are not and my heart goes out to them . When i was in hospital a friend of mine who i had known since school , his wife was in next iso room to me she went home before me in remission but unfortunatly only lasted six months and she passed away . when i wasan apprentice had a forman who had stomach cancer he was a blacksmith and he worked up to the day hedecided to go to hospitl then only after he had lost four stone and could not keep any thing down he went in they opened him up and sent him home he died a week later.

My own auntie died from bone cancer she did not even know she had it till she fell doown in Sheffield and broke her hip she died a few months later still carrying on as normal till broke her hip. I think this site should get back to doing the thing its meant to do help and suport those who come on here we will all be better for it . I can honestly say i owe my life to macmillon and this chat site and the friends i have found on here especially one my prop she knows who i mean so dont need to embaress her by telling you lot ha. I want to keep coming on but i must admit its getting harder all the time I may have to go to pms only and concentrats on cancer voices dont know yet lets get things back together eh!! still love you all

Anonymous
  • FormerMember
    FormerMember

    I totally agree Alan. This site was a wonderful support to me when I was first diagnosed in June, I don't recall anyone questioning whether I was telling the truth. But in recent months I've not enjoyed coming on so much, mainly because people are being upset by comments made. I've always said that for my own peace of mind I would rather support a fake than question/ignore a genuine patient/carer. If at any time I felt someone was not genuine I would simply stop replying to their blogs and inform Admin of my concerns. I hate thinking that a genuine person has been given the 3rd degree when we should be offering our support. I can't bear the thought of someone. who is already feeling anxious/scared/grieving, being made worse because of inappropriate comments. I sincerely hope that this site gets back to how it was on What Now when I first joined. |If I had had the reception that some have had in recent months, God only knows how I would be feeling now.

    Please please please, can we support new people? If you're suspicious, just pass your concerns to Admin........PLEASE!

    Angela x

  • FormerMember
    FormerMember

    I totally agree with everything both Alan and Angela have said. We have enough stress in our lives. to be fighting or distrusting of each other. Not enough days left  for Bert for me to even be bothered. More important stuff to be doing. This site has saved my sanity.

    Love Teri

  • FormerMember
    FormerMember

    Know how much this site has helped me to come to terms with my dear mums awful end to her life, cant find the group now, but it was such a help, and have met so many kind and careing people, lets hope it gets back to normal soon. \it really is needed for so many. XX

  • FormerMember
    FormerMember

    Amen to all the above comments.   I look for support and encouragement when I am in despair, not citicism. Alan is so right, we are all different, and all react differently to situations.

  • FormerMember
    FormerMember

    I went on chat a couple of times and felt an alien. I was ignored most of the time except for a couple who blog on here. So I decided just to stay here, I have made some lovely friends who have helped me and I like to think that I have them. Love to all Julie xx