chat site /fight site

2 minute read time.

I now know what has been going on in chat this last week or so and i dont like it . I first came on the site earlly on this year after having just finished five months of chemo for AML. Had been talking to samaritans most nights just to stay sane .when i acme on at first i was a bit out of my depth as i had never been on a chat site before .

The folk on this site asked the useual qeustions what was i what did i have and then they started to help me by telling me what they had been through and how to cope with day to day living again . After a while i tried to help otjers in same situation and i think i did some. What no one ever did was to question my honesty as to weathr i was telling the truth about what i was going through. I have never done that either . ,We all know there have been a few of those . <nutters>who come on here to make trouble or are seriously disterbed and need treatment them selves They have all been found out by diferent means and are no longer on this site .What we have never done is totally dismissed some one for what they say on site just because we dont agree with it .

It seems to me that some on here seem to think they know a lot about all types of C well i dont i dont even know a lot about my own C never mind all the other types . I do know though that this bloody thing does efect different folk in different ways .Even AML i am a lucky one but two friends of mine on site and thier husbands are not and my heart goes out to them . When i was in hospital a friend of mine who i had known since school , his wife was in next iso room to me she went home before me in remission but unfortunatly only lasted six months and she passed away . when i wasan apprentice had a forman who had stomach cancer he was a blacksmith and he worked up to the day hedecided to go to hospitl then only after he had lost four stone and could not keep any thing down he went in they opened him up and sent him home he died a week later.

My own auntie died from bone cancer she did not even know she had it till she fell doown in Sheffield and broke her hip she died a few months later still carrying on as normal till broke her hip. I think this site should get back to doing the thing its meant to do help and suport those who come on here we will all be better for it . I can honestly say i owe my life to macmillon and this chat site and the friends i have found on here especially one my prop she knows who i mean so dont need to embaress her by telling you lot ha. I want to keep coming on but i must admit its getting harder all the time I may have to go to pms only and concentrats on cancer voices dont know yet lets get things back together eh!! still love you all

Anonymous
  • FormerMember
    FormerMember

    Unfortunately I now find it very difficult to see when someone new appears. There seems to be no rhyme or reason as to what posts or blogs appear on my front page, and its not possible to see which posts have been answered and which ignored.

    I think this site needs a good dose of KISS.

    John

  • FormerMember
    FormerMember

    Hi Allan, I live in Sheffield and this site has got me thru' the worst time of my life. I can talk to people on here 'cos they know where I am coming from. I PM friends mainly, no probs with chat, but cant type fast or keep pace. I do find a lot of brilliant people on here. Keep your faith in human nature Allan, 99% of people are OK and helpfull

    Bill                                                              

  • FormerMember
    FormerMember

    There were a lot of people on last night some of whom I felt were there because of the post on the forum. However. I always welcome peeple when they come on chat and i have always been welcomed. It has helped me a great deal, especially sfter a masectomy, when I was in bed and chatted on my laptop.n I politley asked someone not to swear last night on chat and was given a hard time about it. Someone I have not met on the site before.

    Everything needs to calm and we need to remember why we are all here, because of this awful disease.

    Take care everyone. best wishes x

  • FormerMember
    FormerMember

    when people have had friends who have supported "fakes" and seen those friends hurt by those fakes, then its only natural that people have got cautious on here, this site has got worse, not better since the change over from the old share / what now site....i know i should NOT be suspicious of anyone on here, no one should but its whats gone on in the past that has made people become cautious even though it might not be right..in my opinion and its my opinion as i say this site has got worse for idiots and liars and fairy story tellers since the change over...the mac people should have left the original sites alone, sure we had the odd idiot join in the past but no where near as bad as now...so many good people dont even use this site anymore because of whats going on, genuine people with cancer know how treatments go and how specialists treat you and what they say and what they dont say and find it easy to spot a liar sooner or later my opinion...i dont know what the answer is....its got that bad i wont chat to anyone unless i am sure they are real and yes i know thats not how it should be..i will support anyone who i think is genuine and i have allways tried to do that as people have supported me ....if people want to jump on me thats fine because after all this is only the internet , call me what ever you like it doesnt hurt one bit.....the mac people are responsible for the mess this site has become..half of the users cant find there original threads or there old friends on here....theres a mac site on facebook and lets face facts facebook is know to be the worst place on the internet for liars , and people pretending to be who they are not..why did they make this site like fscebook anyway ? the chat room , i dont use it that much but from what iv seen people in the chat room go there to have a laugh and to forget about the bad stuff so maybe thats why people who go there dont allways get what they are looking for in the way of help....maybe there should be a serious chat room, and a fun chat room rather then everyone getting mixed up in one room...to be honest i dont know why this site needs a chat room anyway BUT thats my opinion and some people like the chat room alot...no one can be blamed for whats going on on the site.....i dont know what the answer is apart from the site owners being able to check on everyone who joins, me included but then maybe thats a dumb idea as well i dont know...like i said i dont know the answer ...and its not up to me anyway to say what should happen on here as i am just a no one.... i avoided being suspected as being a liar from day one as the first thing i did was make a public profile and tell everyone about the treatment i was going to have and the names of my specialists and my doc and my chemo nurses and the hospitals i had been to etc etc...again just my opinion but i think we should all add a profile telling everyone a bit about our situation...like i said my opinion only and i dont claim to be right....its just what i think...i think its easy to show everyone on the site that your genuine.....yes i know people should not have to do that in an ideal world...its a shame really that things have got like they have...the site owners need to get there heads together and sort things out one way or another...the trouble is all the genuine people NEED this site right now because its all we have got which is why i allways say...DONT LEAVE THIS SITE.......just remember this is just my opinion...i am a no one...i dont know whats best...im not an expert ....and no one has to agree with anything i have said....my pms are allways set as open , hate mail and insults welcome...rofl...

  • FormerMember
    FormerMember

    Graeme, I said similar on the forum thread that has now disappeared about the use of chat rooms.

    We all use this site for numerous reasons and I don't think it works having one chat room for everything. You can't possibly accommodate someone who needs a shoulder to cry on, someone that wants to laugh and joke and forget about cancer for five minutes and someone who wants to ask important questions and have sensible responses all in the same conversation.

    Chatting is good and can be very therapeutic but it needs to be managed better to help prevent misunderstandings.

    Bad Fairy x