New here

Hi Bornoffour

Welcome to the womb cancer group. You must be in a state of shock I think we’ve probably all been there when we received our diagnoses. You’ve come to the right place this group is made up of lots of lovely women all with different experiences to share. I was 63 when I received my diagnosis 3 years ago and this group really helped me. I found one of the worst times was where you are at now, you’ve got a diagnosis but haven’t got a treatment plan in place. I remember feeling a bit out of control and helpless. Feel free to ask any questions there is always someone around with an answer and also offload anything you’re worried about. The news will gradually sink in …in the meantime be kind to yourself. Sending hugs

Linda xxx

Thank you Linda. 

Hi Bornoffour

Welcome to the group. You have definitely been through it, and quite a long time between the bleed and your diagnosis, so you must feel really done in.  I didn’t believe people when they said to me, once you have a treatment plan you will feel better, but I did, things felt more under control. What are the next steps for you now? Have you had MRI/CT scan? 

Thank you for your message. I had a CT scan from my pelvis to my chest yesterday evening. A multi disciplinary team meet on Wednesdays and I hoped I may have been discussed today. The full hysterectomy will be the next step, but somewhere in between, I’m hoping I will meet with an oncologist to explain things to me. 

Most likely your team will inform you of the grade and stage of cancer so they can offer you the most suitable plan. The waiting is the hardest part in a way and it's hard on your mental health. I got through it by keeping busy, watching old films (sometimes at night if I couldn's sleep!) and taking up hobbies.

Also, walking and getting outside can help. Have you discussed anything with your family/friends yet? Not everyone can do this straight away, so give youself time to get used to your new normal. Things will improve. Lean on others, even if it's your GP, hospital team or the Macmillan web chat. Be kind to yourself and take each day, each hour a step at a time....

Might have been a little tight in getting results back in time for the MDT yesterday. For me, the MDT met first thing on Friday, and I had appt booked for later on that morning. The appt was booked once they knew they would have all the test results they wanted. Might be worth checking what happens at your hospital.  Hopefully you will have appt next Weds to discuss results/op.

At the appointment I met surgeon, who explained results, drew on piece of paper what he was going to do, and discussed next steps, I.e pre op/op.  For me he mentioned I would need follow up treatment, but “let’s discuss that post op”. 

one of the best pieces of advice I had, which was from radiotherapy nurse was “don’t beat yourself up trying to get answers as to why you had cancer as no one will ever know why you did and someone else didn’t”. So my energy was focussed onthe fact I had it, what do I need to do to get through it.

There’s a thread on here about preparing for hysterectomy which maybe helpful.

Sending you best wishes x

Thank you so much for your message.  

Thank you so much for your message. It is very much appreciated.