Hi , Just got my diagnosis.

Hi

Welcome to the Womb group.

I am sorry to hear that you have had a diagnosis of endometrial cancer. I know it is a worrying time and it can feel frustrating to wait for the next steps. 

My CT scan was done within a week of my biopsy and before I had my formal diagnosis. For me I went from first symptoms to surgery in 4 weeks. There can however be a variation between hospitals and areas. 

The normal first line treatment for endometrial cancer is a hysterectomy where it is medically possible. For some ladies the surgery alone is enough, for others there may be some follow up treatment. 

From the biopsies and scans they should be able to give you a provisional stage and grade of cancer and this is normally then finalised post op. 

Your provisional grade 2 is the middle grade- so not the lowest grade 1 type but not the more aggressive grade 3. So this is positive. 

I am not sure of NHS Scotland guidelines for diagnosis to treatment for cancer but you could give the Support Line a call tomorrow and see if one of the advisors would know. I know there are guidelines for England but do not want to give you the wrong information. I would however expect your MRI to be done as soon as reasonably possible- depending on how busy the hospital is. Once the MRI is done I would expect you to be called in for an appointment fairly quickly- for me it was within a couple of weeks. This turned out to be on a Friday lunchtime. I was given my treatment plan and had my preop checks done the same day. My surgery took place 3 days later. So once the scans are done things can move a bit more quickly. 

Jane

Hi

I live in Scotland and ,like yourself had to wait over 8 weeks for scan and biopsy. Once I received biopsy results, a CT was arranged within 2 weeks on a Friday, then I saw a consultant on the Monday. Hysterectomy was arranged  2 weeks later, so I hope you don't have to wait too long for your MRI scan. I live in Tayside. I am now waiting for pathology results, which is taking almost 5 weeks now. It is really hard to cope with all the waiting , but the lovely ladies here are all supportive. Sending hugs

Thanks Jane, I appreciate your support 

Hi, There is definitely a bit of a postcode lottery re gynae services across the country. Thanks for explaining your timeline - it’s very helpful.  Im in Lanarkshire and am at 8 weeks for scan & biopsy etc, then 3 weeks for biopsy results so far. But if MRI and surgery can happen as quickly as 4 weeks then that’s hopeful. It’s so hard to sleep and function when you keep thinking about cancer growing inside you.  I hope you get the best news from your pathology. Sending love.