I've been ignoring the calls and letters from the hospital (wont bore you with the reasons why) and decided a few weeks ago to attend their last ditch effort to reach me.
The gynaecologist shook me warmly by the neck.
Transvaginal ultrasound: endometrial thickness 35mm, polypoidal appearance, age 51, PCOS, morbid obesity, HRT (poor adherence to progesterone). Unsure if still peri or now post-menopausal. Over a year ago, had a massive haemorrhage resulting in ambulance attendance and haemoglobin going from 12.4 to 9.8 in 3 days. Had to wear incontinence slips. Intermittent small bleeds and spotting since.
LLETZ treatment in late 2022.
Hysteroscopy under general anaesthetic next week.
I'm terrified, even though I'm trained in the medical field. I'm also the victim of a serious assajlt in 2017 in which I was injured vaginally, so have a little trouble sometimes trying to tolerate even minimally invasive procedures. No matter how nice they are, I always decline male doctors examinations.
I am now beginning to get a bit scared. Does anyone have experience of having a 35mm or more endometrial lining? That's what's freaking me out and convincing me I have a malignancy.
I wish you all well.
You've had a difficult time for sure and you have my sympathy. As for the lining, I've had it as thick as 17mm at one point and was found to have stage 1 grade 1 Endomtrial cancer - but that isn't always the case. Many women just have hyperplasia - ie thickened lining and sometimes polyps which can be driven by hormonal shifts and obesity.
I had the coil fitted 17 months ago and it first shed/reduced the lining from 17mm - to just under 4mm, so the coil can work for thinning the lining out. Recently I was also informed that I am now cancer-free, which was good news but I still have the coil in for now at least.
Take it a stage at a time. Get the hysteroscopy over and then see where things stand. Try not to worry. I know it's hard but whatever way it goes, you need to reserve your energies for now. No point worrying about what might be - and even if you do have a malignancy, EC is treatable and curable. There are many wonderful people on where who will support you, whatever the result. Good wishes!
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