Hello new here

Hi Ebag

Welcome to the Womb group. I am sorry to hear that you have had a diagnosis of womb cancer.

With a high grade and/or more advanced cancer then it is normal to be offered follow up treatment and I had both chemotherapy and external radiotherapy in 2022. 

I am sorry to hear that you already have a spinal condition and can understand your worries that this could be affected by treatment. I have come across ladies on here who have pre- existing conditions but can not remember anyone who has specifically had a spinal condition. 

I had no pre existing medical conditions before my treatment but do have some long term effects from it. My neuropathy began from my first chemo and persisted despite changes in doses. Certain chemotherapy drugs are more likely to cause neuropathy than others. Do you know what your planned regime is? Mine was carboplatin and paclitaxel on a 21 day cycle. 

Although my treatments have left me with side effects they have been successful in keeping me cancer free at 3 years post treatment. I do not regret either treatment. 

I wonder if it is worth speaking with both your oncologist and spinal consultant about which regime you may have and what the risks are in your specific circumstances. Changes in regime, doses etc could in effect mitigate some of the effects possibly?

For me the decision to have further treatment meant finding out about all the risks and benefit of the treatment and then making an informed choice. I was also told that it was far better to do everything possible to try to prevent a recurrence than to treat one, once it had occurred. 

If it would help you could give the Support Line a call and talk things through with one of the nurses.

Jane

Thank you so much Jane for your speedy reply. According to my oncologist letter I will be having the same chemotherapy as you. I have tried to get hold of my spinal surgeon but have failed so far due to the recent holiday period but will try again tomorrow morning . I have made my condition clear to my oncologist and will talk to him again about it before a final decision is made. I see him tomorrow afternoon! 

Hi

I also had the same treatment and I now have spinal problems but I got through it all and it's all under control 12. Months later so I am glad I opted for the treatment.

I have had side effects and it was uncomfortable on the radiotherapy table but the staff helped me. Having a bad back and diarrhea was a bit tricky but it is all settled down now and I am back to swimming and the gym which is great at the age of 73 

I wish you all the best

Thank you that is very helpful! So glad you are doing well