Serous endometrial carcinoma

Hi Bangla

Welcome to the Womb group.

I am sorry to hear that you have had a diagnosis of serous endometrial cancer. I remember what a worrying time it was when I had my own diagnosis. Things can happen quickly and it can all feel overwhelming. 

It is good that you have got the scans out of the way and they are done to provisionally stage the cancer- see where in the body it is. The biopsy has already given the grade of cancer so it is all this information that will be discussed on the 16th. For most ladies, where it is medically possible a hysterectomy is the first line in treatment. Mine was in 2022 and it was done via keyhole. I was in hospital for 1 night, had little pain and recovered quickly. 

My own cancer was also a grade 3 cancer and sometimes after surgery there may be some follow up treatment needed. For me it was some chemo and then some radiotherapy. Follow up treatment is normally decided based around the post op results. For some ladies the surgery alone may be enough but your consultant should be able to give you an idea of your treatment plan when you have your appointment. 

We do have the Support Line available from 8am-8pm daily if you feel like talking things through would help.

I wish you well for the 16th and if there is anything you need in the meantime, please do ask. 

Jane

Good morning Bangla, as Jane says below there is a lot of support out there and the McMillan helpline is particularly helpful. 
I was diagnosed with stage 1 level 3 endometrial cancer on 23rd December, had CT scan and MRI scans in the following two weeks, was given results on 16th January and had my hysterectomy last Wednesday. Iam now waiting on histology results and plan for treatment. 
Once I knew the plan I felt a lot better, it is a very challenging time but McMillan have been a godsend as have the other women on this forum. Sending you lots of strength and positivity :) 

Hi Bangla, I have the same diagnosis as you, discovered at the end of September. Walking the walk with all the perks, like biopsy, internal/external ultrasound, CT scans, PET scans, and the laparoscopic/robotic surgery. 

I have had 3 rounds of chemo and hated every one. Just had an interim CT so my oncologist can see "what's up".I have had all sorts of symptoms from the treatment, but with the help of the lovely women here, I'm slogging thru and so will you. Hope is a wonderful travelling companion. I often mention my age, 81, to let ladies know it can be managed. Sometimes, I really feel my age coming home from the hospital, but then again there's the "hope thing".

It took me a long time to feel somewhat normal  after round#3, but my team did warn it really doesn't get physically easier, you just manage it better. My best wishes to you.

Many thanks for your kind words of encouragement, Grace.

I wish you well.

Thanks Jane, your post is very helpful.

Thanks Nicky. 

I wish you the best.

Hi Bangla

i was diagnosed with serous carcinoma last year, stage 4. I had my hysterectomy at the Royal London hospital. All went well, a few blips, but grateful to get it done. I had 3 chemos before surgery and 3 after. May I say that for me the chemo was manageable (I had a few issues which were quickly resolved by the team). I did in fact feel better whilst on chemo, my energy levels went through the roof and felt like I was 40 again! (I’m 64 now). I just wanted to give you some helpful thoughts as you go through treatment. It’s not easy but the time passes quicker than you think and the support is amazing. Good luck. 

Hi there,

My mum was also diagnosed with serous endometrial cancer last year. My mum’s cancer had already spread at diagnosis so she had a more in depth surgery called cytoreductive surgery which involved the typical hysterectomy & also debulking to remove more of the tumours where the cancer had spread.

Her surgery was successful & she recovered well. She then had chemotherapy which was 6 three week cycles over the course of 5 months. She tolerated chemo relatively well. She was a bit tired at the beginning of each cycle, a funny taste in mouth for first couple of days & a bit of joint pain but the medicine helped make it manageable & by the third week these side effects subsided. We were very nervous as she began chemotherapy but it wasn’t as scary as it can often sound & she was well supported by her medical team. 

It’s common for people to also receive radiotherapy after chemo as my mum’s had spread, they didn’t think this would be as helpful but she is on hormone tablets to help keep the cancer away as long as possible. She had a scan after her last cycle of chemo and there was no evidence of disease so she is currently in remission. She is now in monitoring & will have her 3 month check up in April. She’s doing quite well & slowly getting back to work after 6 months off. Last year was very difficult especially with the shock of the diagnosis but things do feel a bit stable now and we’re hoping it remains like this as long as possible.

I’m wishing you all the best with the scans & your treatment. 

Hi, so pleased to hear your mum is doing well. We were both diagnosed last year at the same time, same stage if my memory is correct.  I wish her well x

Hello again,

I am so pleased to hear that Mum's treatment has gone ok and that she is now in remission. 

Jane