I have severe, deeply infiltrating endometriosis. For 14 years I was on depo pro Vera to manage it. After turning 50 it was stopped and three months later I had a heavy bleed and extreme pain. This lasted about two weeks then started again 3 weeks later. It lasted a week that time. I’d been put on HRT 6 months previously with (combined oral) due to perimenopause symptoms. I had a trans-vaginal scan that showed a thickening of the womb lining that would be fine if I’m not yet post menopausal but not ok if I am. There was no way to tell due to long term depo use, so I was sent for biopsy and hysteroscopy. I had that 22nd May. I’ve heard nothing and not had any results but received a letter this morning saying I need an MRI scan on 19th July. The letter was just an appointment letter and seemed to assume I knew I’d been referred. I’m wondering this means I definitely have cancer and haven’t been told. I’ve been online all day and that’s what it looks like. It’s Saturday so there’s no one I can contact to ask why I’ve been referred for this scan. I’m obviously really worried. Has anyone else had this experience and are there any other reasons I may be being sent for MRI. I had similar symptoms in 2023 and had a clear MRI then. Thanks.
Hi RCH
Welcome to the Womb group.
I am sorry to hear of your endometriosis and heavy bleed. The transvaginal scan is a normal first step and where it shows something- such as a thickened lining- then it is normal to be sent for a biopsy/hysteroscopy.
I can understand your concern that you have had an unexpected letter come through before you have had your result.
Is there anything on your NHS app that accompanies the letter that you have been sent?
Is there a number on the appointment letter that you could call?
If not I would perhaps give your GP a call on Monday- I found that anything that I was sent by post was sent electronically to my GP who could often receive it a good week before I did.
When I had my biopsy I was referred straight away for a CT scan- and this was done before I had any results.
I did not have an MRI at all. Some ladies on here have MRI's, some have CT's and some seem to have both.
Lastly, just a thought but you mention having the severe endometriosis- could the MRI be to do with this perhaps- to see the extent of it?
Good Luck
Jane
I agree, its not great to have a letter on a Saturday- would be far better if they called you and explained. However I was told that I needed a CT on the day of my biopsy and they did not know what the problem was then.
With hyperplasia (the thickened lining) there can be different causes- some are not so much of a concern and would likely resolve without treatment and some have potential to become cancerous in the future- so more of a concern and would need treating. Along with the endometriosis - it could be that the MRI is to have a really thorough look- especially if the MRI is pelvic.
With me, I think they had a fair idea of what the result of the biopsy would be as something was seen on the ultrasound. Also being on the 2 week pathway I believe they ordered all the testing at once to save time.
You could give the Macmillan Support Line a call today, if it would help. They are there till 8 pm tonight.
Jane
