Hi
I’m new and wanted to say hello.
I had a full hysterectomy on Tuesday after biopsy from hysteroscopy and removal of what they thought was a fibroid turned out to be suspicious. The biopsy said they couldn’t rule out cancer and I needed mri and ct. the mri revealed a mass in my uterus that is likely to be malignant and planned total hysterectomy. I haven’t got a definate diagnosis yet but told that it is either endometrial stromal sarcoma or an endometrial stump.
I find it hard to understand why they don’t know what it is, most things I’ve read on here most people have a diagnosis from the biopsy before the hysterectomy. I’ve now got a 4-5 week wait before the histology is back post op - also seems a longer wait than most.
Lou x
I had two biopsies due to 2 instances of post menopausal bleeding. Both were negative. I had the polyp removed that was seen during the hysterscopy and that is where cancer was discovered.
Hi, I'm sorry to ask but could you tell me how large your polyp was please? I have just had one removed and am awaiting results.
The polyp was 2 cm by 8cm long if I remember correctly. I had the polyp removed and tested at one hospital but the hysterectomy and chemo done at our local cancer centre. The actual cancer was a small tumour and it spread to the surface of an ovary. There was not a lot of cancerous material to test.
Thank you so much for replying.
I was a bit surprised about my polyp as I was sent for thickened lining, which turned out to be not so thick after all.
I do hope that you are doing ok now x
I just finished chemo # 3 of 6 on Friday. My knees are very sore and I have some tingling in my hands but otherwise I’m ok. I hope your results come back better than mine did. Best wishes
Hi Lou76
My cancer was thought to be stage 1, a simple cancer from biopsy. No spread was seen during the hysterectomy. 2 weeks later after the removed womb had been examined in the lab, I was told that it was a rare squamous cell endometrioid cancer, which was aggressive. I've since learned that these type of cells are difficult to differentiate at biopsy.
A x
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