Stomach pains

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Hi everyone, as you will see from my profile I was diagnosed with carcinoma sarcoma and have had a full hysterectomy 13 weeks ago. I have been feeling great until recently when I go to the toilet to have a wee I get like a starining feeling in my lower abdomen. It doesn't sting when I wee and I don't seem to be seeing or using my bowels any different,  but I'm just wondering if anyone else has had this experience. I am due to start my Chemo on the 22nd and my surgeon has ordered me a CT Scan to see if that tells anything. Trouble is since seeing the consultant regarding my Chemo I am worrying that the cancer has spread. 

  • Hi Nannytobe

    I did get some odd, random feelings in lower abdomen which I wondered whether it was due to everything internally settling down into the space where the womb goes. Definitely felt different when I used the toilet but not really painful, more I would describe as more aware of the sensation. 

    Have you been doing more or doing anything differently, lifted anything etc.

    Hopefully the scan will rule out anything more serious but sensible to get one done. I wonder if there is any scar tissue or something similar formed during the healing which is causing a pulling sensation etc.

    Its natural to worry the cancer has spread and you have had quite a wait to get your diagnosis and treatment plan. Not long now until you start chemo. In the meantime we are here if you need us.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thanks Jane, I have looked into every scenario regarding my stomach and my surgeon did do an examination and said everything felt OK,  I think with the other consultant saying what she did at my meeting as in nothing we can do if it's spread its just got me worried. My surgeon when I spoke to her Friday did say she has just worded it wrong. Saying she should of said if it's spread the treatment will still be the same e. Just that it's got me worrying now. Probably just had the worst week of this whole story. Got my mind racing and i think until I get the CT results it will continue to do so xx

  • Hi no wisdom but hope you get your CT soon and reassurance; the wording does sound clumpy and its a shame that you experienced that’; i think i am learning removing from the op takes longer than it seems - just because our external wounds are sorted, i am starting to see our insides take much longer x

  • I think your surgeon is correct and the other consultant has worded it in a confusing way. 

    The most common chemo regime for womb cancer seems to be paclitaxel and carboplatin on a 21 day cycle. This is the same for early stage or more advanced. 

    I can understand why you have been worried and I hope the CT brings reassurance. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Yes I'm 13 weeks post op and I think i just expected everything to be back to normal now. I think if the consultant hadn't said anything I wouldn't be worried. Just worded wrong I was told, but it's just not that easy to get it out if my head c

  • Thanks Jane, yes that's the Chemotherapy that i am having. I'm prepared for that now. Just hope my scan results come back quickly and I can get back on track x

  • I think that is what the consultant was trying to say- its the same chemo treatment whichever stage it is. 

    If you don't hear re the scan within a couple of days perhaps give them a call. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • I have a telephone appointment with my oncologist nurse tomorrow, I'm going to ask her to put a note on my file that if they come back before my appointment with the surgeon to ring me

  • Good plan, the sooner you hear the better. Waiting is tough.

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm