Hi I had abo hysterectomy back on 10 Dec - all seems to have gone to plan and gynse consult said during telecon all cancer removed.
I am due a face to face check up in about 6 weeks.
However my discharge letter shows Substantial LVSIs. These were not mentioned during telecon and having never heard of them I googled. Google worried me so I phoned clinic and nurse explained that MDT had agreed no follow up treatment needed.
I am still concerned LVSIs are found in blood vessels and can lead to metastasis and will discuss at my face to face.
Meanwhile I wondered if anyone else on here had also been diagnosed with substantial LVSIs and if they had had any further treatment. Thank you.
Hi Judi
I hope that you are recovering well from your surgery.
Do you know what your stage and grade were post op? This influences further treatment.
I also had substantial LVSI. I was stage 1b (so contained) and had carcinoma sarcoma.
My follow up treatment was 4 cycles of chemotherapy and then 25 sessions of external beam radiotherapy.
Because of the LVSI I would be asking why further treatment has not been recommended? There may be a good reason for this however it would be worth asking for further info.
My chemo started 6 weeks after surgery and then the radiotherapy followed that. If further treatment is needed then it normally starts fairly soon so it is something I think needs clarifying.
Jane
