Morning everyone,
I'm a 37-year old woman who was diagnosed 2 weeks ago in North West UK. I don't have a partner but would like to have a family in the future. I am waiting to hear how serious (eg. what stage) it is after having my MRI last week. Results were delayed which has pushed back my 'results + treatment' appointment by a week unfortunately. I'm wondering if there's anyone who hasn't undergone a hysterectomy and been able to have children after diagnosis? The consultant said there may be clinical trials for hormone therapy available. Does anyone know about this or have gone through it? I'm in Manchester and I know Christies (down the road!) does incredible cancer treatment...
I would be so grateful to know any anecdotal info, stories or experiences and admit I have not searched these forums yet as am so new here...
Thanks in advance 
Charlotta
Hi Charlotta
Welcome to the Online Community and the Womb group.
I am really sorry to hear of your diagnosis of endometrial cancer
At your young age I can understand why your fertility is important and there can sometimes be hormonal treatments such as Mirena coil that can be used in certain ladies in certain circumstances. It depends very much on stage and grade and is not suitable for everyone.
There may be some information of use here.
Fertility and cancer | Macmillan Cancer Support
Cancer and fertility | Booklet | Macmillan Cancer Support
Womb cancer booklet | Macmillan Cancer Support
There is some information about trials and how to find them here.
Cancer clinical trials | Macmillan Cancer Support
I would hope that when your MRI results come through you will be seeing your consultant again and with the results they would able to advise you on the recommended treatment and whether there are any trials worth looking into. Until then there is some info that may help you prepare for the appointment.
If you feel like talking things through would help, then please do give the Support Line a call.
Jane
Hi Sabrina, sorry it's taken me 2 months to reply. Being that delayed is just terrible! I am actually migrating to the NL as I have a new job. My dog has also been unwell too so I've barely been coping with an ever fluctuating situation. My situation is perhaps different...they are testing for Lynch syndrome (tho my brain is so foggy I can't recall if the tests have come back...) but I've already started the Mirena coil the week before last. Maybe the biggest difference(?) is I don't have a partner. Although maybe you don't either? I am seeing a fertility specialist oncologist Wednesday to talk about fertility...I am scared 1) of not being able to conceive naturally 2) choosing to go down this fertility-saving treatment in vain (ie. if my ovarian reserve is rubbish or I'm infertile in other ways) 3) freezing eggs and then being under pressure to conceive via IVF in a particular timeframe while working full-time (and how to even do that if I'm dating someone at the same time for example?!) before having to have a hysterectomy 4) having a hysterectomy - losing a bit of myself, literally and 5) being a single mum by choice only for me not being able to cope in the future. My friends who are in couples are half dead from having kids now. How do people do it, especially as an older parent? Anyway, let me know if you (or anyone else reading this) has any thoughts in response to share. I am asking the universe for guidance, reassurance and pearls of wisdom right now...Thanks so much for relying to me And before I leave, how are you going with IVF? And how are you feeling generally? I hope and wish you wellness and goodness xoxo
