Hi everyone

Hello Lorna C 

Sorry to hear about your diagnosis but welcome  

I had robotic total hysterectomy and BSO last September and I needed adjunct radiotherapy. I found wonderful support on here and you will too. 

Ask any questions we will help if we can. We all understand this surgery and have our unique experiences to share.

Wishing you all the best for Thursday - will be thinking of you. Let us know how you are doing when you can.

Kxx

• Hi Lorna and welcome to the group. I'm sorry to hear about your diagnosis. It's all such a shock and a lot to take in isn't it? Everyone on here knows all too well what you are gong through and there is a lot of support and helpful information.

             I also had a full hysterectomy with all my other lady bits removed!. It was done on March 23rd by laparoscopic (keyhole ) surgery. It all went well and recovery was good. Discharged from hospital the day after. If you have full abdominal surgery the revovery takes a bit longer. I'm starting to go back to work next week. I probably could have gone back a bit before but have been quite tired still. Also, we cannot underestimate the emotional and mental stress we need to revover from. I was able to go on short walks a few days afterwards and this helps.

I didn't need any further treatment after the hysterectomy so cannot comment on these. But plenty of people on here have had other treatments and can share their experiences. I would say though, that until you get through the operation and then the results of the histology, don't jump too far ahead in anticipation. Good advice I got on here was to take one step at a time. At the moment just prepare for the operation, make sure you have help and support for revovery- get food prepared and easy to prepare types of food. Get some good books to read and allow yourself to fully rest and recover.

Take care

Hi Lorna

Welcome to the Womb group.

I also had carcinoma sarcoma and it is a rarer type of womb cancer. If you click on my name, my profile will come up.

I wish you well for your hysterectomy on Thursday. It is great that the ward sister was there to answer your questions.

Most grade 3 cancers (carcinoma sarcoma is one and is a type 2) would likely be offered some sort of follow up treatment. This is confirmed by the post op pathology, however they look at lots of different factors- stage, genetic factors etc.

My advice would be to focus on the surgery and do things one step at a time. It is good to be prepared that you may need some more treatment so then it is not such a shock when it is suggested however try not to look too far ahead as it can feel overwhelming.

If you want to ask anything about the carcinoma sarcoma then I am happy to answer anything. 

I am glad that you are finding that the community is bringing some comfort. Cancer can be a tough journey to face but feels much more doable with people by your side. The Support Line is good if you feel like chatting things through would help. And do please post on here as much as you need to, there are lots of lovely ladies on here who will want to offer you support.

Take care and do let us know how you get on.

Jane

Hi hi Lorna C. You’ve come to the right place here everyone is so friendly and helpful you also pick up some brilliant tips I got diagnose with womb cancer last year I had a hysterectomy followed by brachytherapy I’m doing well this is the place to come if you have any questions everyone here is in the same boat all the best with the hysterectomy think positive and take one step at a time take care  Coffee 19

Hi All

Thank you for your kind replies - I’ve had to rejoin the group due to technical  problems logging in under my previous username.

The surgery went well and I’m due back at work tomorrow. I could have returned slightly sooner but kept feeling rather tired and I’ve only really started to feel stronger in myself recently.

I had a catch up with my consultant who is pleased with my recovery and has confirmed that I’ll need adjuvant treatment, 6 cycles of chemo followed by brachytherapy.

I have an appointment with the oncology team on 4 June and guess my treatment will start pretty soon.  I have lots of questions for them, especially potential side effects. The recovery from the hysterectomy felt ok but I’m not looking forward to the other treatment as it’s having to get over that hurdle a few times.

Sending lots of love to everyone who is dealing with this

L x 

Hi Lorna, I’m glad you’re recovering well from the hysterectomy but am a bit surprised that you’re returning to work after only 5 weeks, as recovery is usually 6-8 weeks, and am really hoping that you will be okay,