Hi all,
I'm just looking for advice. I'm 52 and been menopausal for 4 yrs when I had a small bleed 3 months ago. Went to the GP who referred me to gnaeay and took a smear..2 months later she phone to say cervical smear was negative but the were abnormal endometrial cells found.. I then had a gnaeay consult and she found a mass in the middle of my uterus during her exam and said I will be having a hysterectomy once they determine exactly how widespread it is. 2 weeks ago I had a hysteroscopy and an attempt at biopsies done under ga. They couldn't get the biopsies needed as there is too much scarring apparently. They did do a Lletz procedure. A week later I had a very smelly black discharge, pain and temp so I've been on 2 antibiotics for a week and feeling a little better but I've woken up this morning and I'm bleeding heavily. I really am a bit lost as nobody seems to be able to say if all this normal. I have pain in my abdomen and out my back constantly and I'm exhausted all the time. I'm due back to work tomorrow and I'm worried about doing more damage. I haven't been told how long before the next step or even what happens next, and now now I'm bleeding. Can anybody advise me please?
Hi Tannia and a warm welcome to the Online Community. You've joined a group of lovely supportive ladies who, between us, has a wealth of knowledge.
Have you been allocated a CNS? (Clinician Nurse Specialist). If so give her a call and ask her advice. If not give your Consultant's secretary a call and try to get your consultant to call.
Frequently taking biopsies result in a bleed later. A Lletz procedure removes part of the cervix and it appears you've had a reaction resulting in the need for antibiotics. It might also be a good idea to give the Macmillan nurses a ring on the support helpline, freephone 0808 808 0000 and have a chat.
The next step after hysteroscopy and biopsy would be a CT scan and perhaps a MRI scan. Then a MDT (Multi discipline team) would meet to discuss the findings and plan your forward treatment.
It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. Why not take a few moments to update your profile. It's always helpful for us to read if we want to ask you questions and you also won't end up repeating yourself. You can enter it into your profile (click on your username and select “Profile”) . You can amend or update it at any time. If you’re not sure what to write, just click on my username.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it really informative and helpful.
Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.
You might also find this link to what to take in my overnight bag useful for when you have surgery.
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi @Tannia
Just to add, the black smelly discharge would be considered normal after a LLETZ, but the temp might indicate an infection, hopefully cleared up by the antibiotics. Some bleeding after the LLETZ is also considered normal, with the proviso that if you are filling something like 2 pads or more an hour you should seek medical advice immediately. Hope things start to improve for you, but do consider whether you really feel able to return to work tomorrow.
Sarah xx
