Hi all.
I was diagnosed with stage 2 grade 3 womb cancer last June. I had a radical hysterectomy last July.
I have just finished 6 sessions of taxol and carboplatin chemo.
I am yet to start Radiotherapy and brachytherapy.
I’m just wondering what to expect and any tips would be gratefully revived. Many Thanks
A water bottle as you may get really thirsty. An iPad or book. Remember a charger. Socks. Easy shoes as you’ll be back and too to the loo. Also something like a warm cardy and when you have a cannula in you can cover up or take off easy.
they will give you a blanket if your cold and they will feed you. Take snacks if you want.
good luck. Xx
Hi Lou59 - I am having 4 cycles of Paclitaxel and carboplatin and, like you, it is more of a preventative following my hysterectomy in November- then I will have brachytherapy after the chemo.
I am due my 2 nd treatment on Friday and have just had my blood tests today. It is a long day, so take ipad, books etc to keep yourself amused. I wore layers - the ward became quite hot when the sun came out - not easy to take a jumper off when attached to the cannula and machine - but at least I could open the cardigan up. I did take sweets, but didn’t need them - the funny taste was very temporary and I managed fine overall. You can take food - I took ginger biscuits and a banana! …..but the sandwiches for lunch were fine - much better than the food when I had the hysterectomy!
Like Barb says - unfortunately my hair started coming out on Day 14 and is now really going - I cut it very short, so that it was not quite so upsetting and does not bung up the plug hole! I have not felt sick at all - bit I have had the pains in my legs in the first week and the pins and needles in my fingers and feet - I was still able to go for walks and generally potter about, so I found it manageable- my worst days were day 3 - 8 and now I feel fine, apart from slightly numb fingers and toes. I had the dreaded constipation too! All good fun - hey ho!
Good luck with your treatment - I feel better going for my 2nd session, knowing what to expect. Everyone reacts differently, but hopefully you will find it bearable too. Let us know if you have more questions and how you get on
Hello Stanmore
How are you doing, hope you're well. If you don't mind sharing, can I ask your diagnosis please? X
Morning.
i was perscribed amatriptoline for the pain in my legs. When i finished my chemo i came of this medication.
About a week after i started to get the pain in my legs again.
so ive gone back in them. Within the first fose the pain subsided.
i wish you sll the best. Xx
Madesp. Hi Mad. I've just finished 5 of my 6 paclitaxel and carboplatin cycles so thought I'd chip in about side effects. I kept a daily log and wrote down everything. Temperature, tablets/meds taken. If I'd had a bowel movement - or not after 2 days you need a laxative. I've now added blood pressure 'cos I've been a bit high when assessed at chemo suite but think it's white coat syndrome. The nurses will ask about nausea/diarrhoea, pain, shortness of breath, headaches, swelling anywhere - tiredness and lethargy, appetite -they're very thorough. I found I suffered nausea and felt really rough on day 8 after my chemo. My Oncologist did say start taking the anti-sickness tablets on day 6 and that seemed to work. I do feel on the bad day my body's out of sync with the world and go back to bed with my bucket.
Some days food is tasteless so spice it up if possible - I love chilli and curry so no problems there. Funny thing you can cook something and it smells lovely but what you eat is tasteless!
My main side effect had been peripheral neuropathy in hands and feet for which I'm on tablets, 1 daily first week, 2 daily week 2 and 3 daily I suppose until it clears up but can be permanent. Another embarrassing thing I'm experiencing is bladder incontinence. I've always used panty liners for the unexpected follow through after a sneeze us older ladies can have but lately have had to move up to full incontinence pad. The other night approx. 4am I got up to go to the loo and it gushed out - never had that happen before and mopping up in the middle of the night not good. Thank goodness we've got laminate floors and rugs, hate to think if we'd had carpet throughout!
I've also been given antiseptic mouthwash for the little ulcers I've developed on my tongue which tastes horrible but helps.
Apart from being a baldie, not recommended in the cold (but I do love my wig!) I'm pleased to say I've reduced my morphine right down and honestly can say except from the day I mentioned (approx day8 ) I feel fine, walking 3-5 miles daily.
Hope that helps,
Big hugs, Barb xx
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