Yesterday I was telephoned to say I could have my mri scan today at 1.15, which I thought was so quick, and no thinking time. 2 hours later I was telephoned to say the scanner to be used for me had broken, and an engineer was coming, but at the same time of my appointment ! Just my luck! They can’t offer another mri now until next Tuesday, as it’s Bank holiday weekend!, so that will delay the MDT meeting, and obviously I won’t know the extent of what’s to be done, so another week of this feeling of no idea what I’m feeling! Aaaggghhh! - that’s me screaming inside, because that’s just what I want to do!
I feel your frustration! I've had my gynae appointments, MRI, CT scan and surgery cancelled/postponed/delayed since diagnosis in May - still waiting for something to happen! It's becoming expected now, but there is the consolation that this is a very slow growing cancer - or so I've been told and I'm clinging on to that, whilst inwardly screaming along with you!
Aw skippyT, I can’t believe your distress! That’s so cruel, I totally agree that we must cling to the knowledge that the cancer is not a fast runner. I really appreciate your reply, it’s a very isolated lonely place in our heads, and to know there are lovely kind people around definitely is a massive comfort. Anytime you need a chat or rant or an inward scream- I’m here , take care of yourself, I send huge hugs, love Emm x
Hi Emmpea,
I know how you feel.
I was suddenly called up before my operation date to go for a pre med, with the operation a couple of days later. I had no pads, no bag packed. I was in panic mode. As I was at the pre med, they rang to cancel the operation!! My CNS told me that they had an emergency and it was deemed I could wait. I had the operation 2 weeks later. You just have to be prepared for anything! It does nothing for the blood pressure!!! xxxx
Hi Emm - I feel very strange about the whole thing - as I'm not in any pain or discomfort, just a bit of bleeding each day, I sometimes find I forget I've got cancer, then I remember that I've seen the photos and no-one will insure me to go on holiday with my friends (priorities!)!. The letter for my next appointment arrived this morning, so we'll see what next Tuesday brings.
Aw NannyAnny that sounds an ordeal and a half! It’s the adrenaline & panic that absolutely does me in! I’m so glad you got sorted, and I truly hope you are on the road to being well and healthy, as for blood pressure, well, mine doesnt behave on a good day, so it really feels like it’s going to pop! Thanks so much for your contact, it’s great to speak with you, sending love Emm x
It really does feel like people are talking about someone else! I know exactly what you mean, I feel like I’ve learned a completely new language in the past 5 days, a new way of life and I’m in a parallel universe to everyone else! I truly hope your appointment goes well next Tuesday, and I will be thinking of you & sending loads of positive hugs to you. Love Emm x
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