A new frightened & terrified member saying hi!

Hi Emmpea,

I can equate with you, somewhat. I had a miscarriage at 20 weeks, which involved a labour, all for nothing!!! Fortunately I went on to have 2 girls which helped me get over all the trauma. I never asked the sex, so it remained as IT. That seemed less personal and helped.

As for the cancer. I had been through it all with my husband 13 years earlier, and knew the likely treatments and procedures. I was scared of the operation, even though I had been in hospital several times. At 72 I was scared of not waking up again!!! I had keyhole surgery which was marvellous. Far, far better than a cut. I healed quickly, and needed no other treatment. I have just passed 4 years afterwards, and no more trouble. I was Stage 1A grade 2. I have nothing but praise for our NHS. I'm sure if you tell them about your back problems they will take extra care. I told them that our family suffer from blood clots, so I had to inject for 6 weeks instead of 4 as a precaution.

Finally, welcome to the group. Ask any questions. There is usually someone who can answer. xxxxx

Oh NannyAnny, thank you so much for your reply. It truly means so much to me to speak with fellow women who can relate to my feelings. I am so pleased you had such a great outcome, I really hope my surgery will be like yours. I am dreading the time I have to walk through the hospital door. I have terrible images in my mind all the time of what they will do, and I am so frightened of general anaesthetic which I know logically I shouldn’t be so scared, but I just can’t help it. I think it is more fear of the unknown. Just telling my family I have felt so guilty of causing them upset and fear,especially my daughters. One of them is like me, a big softie, and the other very pragmatic, in right mum, get it out and just blast it with chemicals to make sure it’s gone!- if only it was that easy !My poor husband is like a rabbit caught in headlights, he’s so supportive, but keeps saying all the wrong stuff! Everything I see on tv seems to relate to cancer, all adverts do, and so does things online, it’s as though I have been swamped by it. 
it’s a pleasure to speak with you, and again, I thank you so much for reaching out. Take care, and I send lots of hugs, love Emm x

Hi Emmpea. Don't worry my love, we've all been where you are now, frightened, numb and thinking this can't be happening to me. I agree it was totally like I was on the outside looking in and to be honest I'm still there a year later thinking it's someone else that gone through this. But you are not alone, we're all here to support you having been there ourselves.

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username. Might be a good idea to post this, your first post as it's informative.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. Try and read a little of it before you speak to your CNS (cancer nurse) tomorrow, or refer to it after or come back on here and ask us.

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

Sending you welcoming hugs, B xx 

Thank you very much MRS BJH. Your support really is immense to me right now. I will definitely read your recommendations, and ask anything I am not sure about. One minute I feel so sickly, the next I cannot keep still, which is really difficult as I have real issues with my leg & back! I have given so much thought to what’s the worst thing I’m worried about, and I think it’s the feeling of being in the hospital on my own. Due to my ptsd I have many social phobias, and never go out alone, so the hurdle of actually being away from home with people I don’t know, and having procedures that terrify me is really tipping me upside down. I have spoken with my Gp who has prescribed diazepam on top of my daily anxiety medication, so at least after 2 of these at bedtime I have managed to have some sleep, but waking up to reality is so overwhelming. Thank you so much for speaking with me, I am so pleased you are well a year on & your treatment was successful, I send hugs and continued good health , love Emm x

Hi Emmpea, Emm. Yes it's daunting to have to go to all these tests and everything on your own. My hospital stay was easier than I thought, the staff all really caring and friendly, nothing too much trouble so don't worry too much there. TBH if you're feeling a bit fragile the last thing you want is to make small talk! I'll also mention I suffered discomfort rather than pain as a result of the op. Main pain was trapped wind and constipation but we'll go into that later!

Start writing down a few notes and questions. When you get to meet your Surgeon/Consultant make sure you mention your compressed discs and nerve problems. If you have keyhole surgery you're put in a particular position, not flat on your back on a table, which resulted in a few ladies having a stiff shoulder, not me!

Come back and chat whenever you want. I'm normally on here between 10.30 & 14.00 but there's always someone around. I confess when I was in my just diagnosed, terrified stage, I was on here at all times of the day and night.

Big hugs, Barb xx