I'm new here. Hello.

FormerMember
FormerMember
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I am a very fit 70 yr old who can easily run 50 miles. I have been diagnosed with endometrial cancer with metastatic spread. Stage III. I have been told it is incurable. I'm seeing consultants/specialists on Wednesday to discuss treatment. Has anyone experience of this & what questions should I be asking? Thanks 

  • FormerMember
    FormerMember in reply to MrsBJH

    Hi Barb, thank you for your comment. Yesterday I took my friend who used to be a orthopaedic surgeon with me as she knows a lot about all things medical & I was confident that she would remember all that was said. My partner was the driver for the day & stayed with the car as we were only allowed one support person in the room with us. The meeting was with two "top dogs". First one of them asked me about my journey so far. Luckily I had kept a diary and was able to tell them. They explained what they could do for me & we asked a lot of questions. I asked if I could see the scans and was shown exactly what was going on inside me & that was very interesting & really helped. They didn't hurry me & I felt I was getting great care. My final question was related to my fitness & I asked if I had been ten years younger would they still have offered me the same treatment (in other words, was the treatment related to my age or to my fitness levels). They didn't hesitate in saying that because I was fit for age they were happy to throw everything at the cancer. So the outcome is that I start chemo on Thursday & if the tumours stay the same after so many weeks, or even better if they shrink, they will do a hysterectomy, followed by more chemo & radiotherapy. I realise there may be lots of side effects & hope that I can cope with any. I'm feeling very positive about the whole day.

    Oh and the good news is that I don't have to travel to Preston for the chemo. I can have it locally in Kendal. 

    How are you?

  • Hi Helvellyn Girl. Glad to hear it was an informative day. It's good to have a plan and I hope it works out well.

  • Hi I'm good thank you!

    So pleased to hear your consultation went well and you were allowed to take someone in with you. I recall it was this day last year I met my Surgeon, CNS and another doctor. In retrospect it seemed like I was on the outside looking in, not really there - just numb with shock even a nurse had told me a couple of days previously I had cancer!

    I'm so relieved to read they didn't hurry you and explained everything fully and they were honest with you. I've read on other forums how impersonal Consultants can be and it's more like a production conveyor belt.

    Great to hear your chemo can be done locally and you don't have such a long journey. I'm sure you were probably given reading information yesterday but I've linked some Chemotherapy reading material you might to take a look at.

    Sending you big hugs, Barb xx


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  • FormerMember
    FormerMember in reply to MrsBJH

    Thanks so much Barb. I had got used to the idea that I had cancer before I saw the specialists so there were no big shocks fortunately.  Thanks for the link to the chemo. I picked up a booklet about it at Preston, but will look at that link too. Lots of hugs to you and thank you for your support. x

  • You're very welcome, I hope you have a good weekend!

    At the moment I'd love to just go and sit on the shore of Wastwater, I always feel a sense of calmness there!

    Barb xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • FormerMember
    FormerMember in reply to MrsBJH

    I know that feeling. Anywhere that is peaceful has that effect on me. Just back from a walk over Loughrigg (Ambleside) today. Food for the soul. xx