Hi. I’m new. May 27th my world came down but deep down I knew. I’m 47 and have had severely heavy bleeding and pain for 2 yrs. backwards and forwards to doctor explaining that this is not normal and I want to be referred. Had tranasvaginal scan approx 20 months ago and was told I have 2 fibroids but it doesn’t explain the heavy clots and flooding I experienced so needs further investigation. I was offered the coil and refused it. Kept being told I was approaching my menopause. Then Covid happened, doctor put me on transenamic acid and that was it. Repeat prescriptions only. I had to sit on towels at work, wear black clothing all the time and frequently dash to get changed or home to shower. Finally I was due a smear in dec 2020, it came back clear and I naively thought it meant everything was ok... I’ve since been diagnosed with under active thyroid and a random doctor actually listened to me over the phone and referred me back for another transvaginal scan. This led to biopsies and having a consultant who was shocked to tell me last week that I have endometrial cancer. At 47 and pre menopausal he says he did not expect it. I’m so angry. I have my mri Tuesday and waiting to see how bad it’s going to be. I’ve been told I will be fine. Hard to say to others when you don’t believe it yourself. I’m sorry to be negative. I hope I can be more positive after Tuesday. I can’t stop thinking about my kids (29 & 27) and grandsons. I’m so heartbroken right now. Telling my daughters was the hardest thing I’ve ever had to do. I feel like I can’t say what I really want to say because it will upset others. I likely have 2 whole weeks before I know what I’m dealing with and I just want to curl up and be alone until I know. Any advice ladies? Xx
Hi Viv,
Thank you so much for taking the time to respond, I feel like no one I know really knows how I feel so this really is a comfort. I am sorry that you have clearly been on the same journey - being a woman is punishing on many levels!
Yes I realise now that smears don’t pick up anything and my daughters and sisters did not know this either so clearly there is more educating to be done somewhere.
I have been told I will at the very least have a full hysterectomy (ovaries too) within 3-4 wks, pending results from the mri. I’ve been asking for one for just over a year now but they were not
n as I haven’t had my menopause yet. my girls have been amazingly supportive already and am sure will continue to do so.... I am lucky to have so much support around me, I have spent time readinher people’s stories and some ladies don’t have a support network which has made me realise a few things. There is always a blessing even when times are so dark and gloomy. I hope to be able to back and share some good news. Fingers crossed and thank you again. I wish you love and strength
MummaJ
Hi MummaJ you've come to the right place to find comfort and support from ladies who have all been on this rollercoaster ride. It seems that you've been failed by the system badly. I can understand your anger and frustration when they don't listen to you when you're telling them something's wrong.
Don't worry about feeling negative and afraid, we've all been there. We've cried, ranted supported each other and even laughed together but were here for you. Once the MRI scan's been done they'll have a clearer picture and form a treatment plan. Until then ask any questions and we'll be around to answer.
As for telling your family it is very hard but they'll probably surprise you by being strong for you. It might be helpful for them if they take a look at Family and friends forum.
Sending you welcoming hugs, Barb xx 
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