Joined this forum to see if I can get some advice on side effects of letrazole, diagnosed with endometrial cancer last May, tried bracytherapy , sorry if spelt wrong, but it failed as they couldn't get near the growth due to past surgery and a large none cancerous growth , my consultant says I am not suitable for surgery at the moment due to other health problems so advised I tried letrazole to stop it growing, the last scan showed it had shrunk so it is working, but oh the side effect! The hot flashes I can cope with as they happen much less often now, but the muscle and joint pain!!!!
I have asked both my consultant and my GP for help with the pain and all they say is take paracetamol, it takes the edge off but not for long, has anyone else been on this treatment and how did you cope with the side effects please?
Hi and welcome to our little corner of the Online Community. Here you'll find a lovely group of supportive ladies who have all been exactly where you are now. A possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.
I myself haven't had Letrozole so can't offer any advice, some other ladies might come back and answer. From what I've read elsewhere you're advised to ask your GP to prescribe painkillers and I know Paracetamol rarely take the edge off. Once you go up to Co-Codamol you're on Opioids which can be addictive. You could Ask a Nurse here on the forum, just click on the link I've created, but you may have to wait a day or two for a reply.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer I found it invaluable in my journey.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00 8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .
There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
Sending you welcoming hugs, B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
