Mid 50s, post menopausal just diagnosed with endometrial cancer

Hi Shaz2966. I haven't seen you post before so welcome to our little corner of the Online Community to the Womb cancer group. Here you will find a lovely group of supportive ladies who are all at the start, in the middle, or at the end of the same rollercoaster ride so it’s good to hear that your operation has taken place. Hopefully you’re making good progress and healing well.

I was a bit surprised to read you're already driving. I was told not to attempt it for 8 weeks and also to check with my insurer's first. I'd check with your CNS -  Don't risk a prolapse!

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. I would copy and paste your post as it's very informative.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

Sending you welcoming hugs Bx 

Thanks

I'm well on with my Kegel exercises.  I find driving easy and therapeutic. I was told as long as you can do an emergency stop, you're fine.  I could do that but haven't had to for a long time.  Really driving is just sitting down and moving your legs a little bit. 

Thank you Supercub, you are very kind. That is really interesting, I do understand and recognise the pain you describe, for me I have had it for a very long time and its really good to hear yours has gone, hopefully mine will too, can’t wait to see the back of it. I spoke to my GP today who says that stress and anxiety can increase the discomfort in the stomach so i have tablets to try. I feel utterly wiped out at the moment with no energy at all, but it has been a better day today than yesterday, I’m feeling much more positive and its thanks to you and all these lovely ladies on here, who are all being so very kind, by sharing your experiences. Thank you again and keep going with your recuperation. Xx

Hi Shaz, thank you so very much for sharing your experience. It sounds like you’ve been through an awful lot but you must be very relieved to be on the mend. I hope you get good histology results back soon. I think waiting for results is as hard as any part of this journey.

I approached my hysteroscopy and biopsy in a very cavalier fashion, having not read about anyone else’s experiences, probably just as well I think. I wasn’t expecting them to find cancer, so saw it as just another investigation and hadn’t appreciated what was involved. Immediately beforehand, i was told to let them know if it was too much to bear and they would stop and reschedule with a general anaesthetic, that was the first warning! (Other than my leaflet suggested taking painkillers an hour beforehand) but i was pretty determined to keep going if i possibly could. Once underway, I was offered gas and air and that made a huge difference and the all female team were excellent.

I’m sorry to hear about your depression, thats hard enough to deal with, without this too. Hopefully you will get good news soon and then you can concentrate on making a full recovery. I hadn’t appreciated we wouldn’t be able to have a glass of wine after the op! Hopefully you will have one soon. I’m off to look for earplugs! Thanks again and good luck for your results, sending a virtual hug Xx

Wondering how everyone is doing today? I hope you are all recovering well. I feel I am back on an upward keel and its very much thanks to you lovely ladies. I am in a practical mood at the moment, getting lots done ahead of enforced recuperation! long may it last as it takes my mind off everything else! Still waking up with a very uncomfortable stomach and mild pain, but having mentioned to my gynae team last week, they told me not to worry about it as things do not change that quickly, so I’m just ignoring it. Sending you all virtual hugs Xx

:-) haha!

Hi Paeony,

I felt compelled to reply to you as my story bears some similarities to yours. In my early twenties a smear test revealed something that needed cauterizing on the neck of the womb. I thought no more of it until I was pregnant with my first child. At 18 weeks I started bleeding, and the baby literally dropped out (after a mini labour) A few months later I lost another pregnancy at 6 weeks. They then decided I had to have babies stitched in at 13 weeks and injections until then to keep the womb closed. I managed to carry two babies like this,with a scare with one of them, but spent years  worrying and being distressed! Pregnancy was far from a happy time for me.

When I was diagnosed with womb cancer (nearly 4 years ago now) it was almost a relief to get rid of the troublesome womb!! I somehow knew this would happen. Fortunately mine was caught early. I was 1A and just needed a hysterectomy. I'm sure years of worrying about unexplained bleeds helped me in the end!! I was 72 at the time and was petrified about my age, the pain, my recovery, etc, etc. It was far far better than I imagined. I had keyhole surgery and recovered well. 

My husband was very good. He had throat cancer 14 years ago, so it was payback time!!! I found the best thing beforehand was to keep myself busy. After the operation go easy. Don't try to do too much, but I think your body tells you when to stop. Most of all, make the most of every opportunity to do things. Anything to take your mind off it all. xxxx

Thank you NannyAnny for sharing your story. It’s reassuring to learn it wasn’t as bad as you expected. It’s been a very long week but as you say best way is to keep busy and I’ve done that. I meet my consultant surgeon today and expect to get an op date. Ive written all my questions down and my husband can attend with me, so between the two of us we will be better informed later today. I’m nervous and apprehensive, but i just want to get on with it. its all emotionally draining and I’m feeling exhausted. Thanks again Xx

Hi . How did your consultation go?

Sending hugs, Barb x

Hello Paeony, I  hope all goes well today and that you get some answers to your questions and a date for your op. I  remember  going for my consultation  to get the results of the MRI  and op date, the consultant  was running an hour late and it was a really hot July day, I  couldn't sit in the waiting room but stood in the corridor will my husband as there was a bit of cool air. This was before covid!  

Take care.