36 & recently diagnosed with Endometrial Cancer

Hi Tor36

I was told of my diagnosis on the 7th April too, I am currently on Hormonal treatment as you and waiting to speak with a fertility specialist too. I’m 39 and my diagnoses came as a shock to to me too. I had gone in to have polyps removed from my womb lining as I had been having unusual spotting for over a year. I have PCOS and have been persistent with my doctor about my issues. So for me the fact they never discussed the risk of cancer has made me feel frustrated.

I’ve read lots of good reports on here that the hormone treatment works and my consultation said that from lab test my biopsy responded well to hormones. To be honest I have left my appointments feeling quite deflated, like they just want me to have a hysterectomy and not bother with the hormone treatment. But I’m sticking to my guns on this and if things change with my diagnosis I will take it from there.

have you started the Provera tablets yet? I have found it makes me want to cry for no reason and I am not a cryer lol I am also peckish all the time! 

Wishing you all the best for you further tests
Rowena

Hi there I was 31 diagnosed last November had my op on the 30th of November. I had already had two kids so I chose to go straight to hysterectomy. It was a total shock mentally and physically i am still recovering now. After my op I chose to have genetic testing witch thankfully was negative. I would think hard about the genetic testing and talk about it lots with the councillor they give u.if it is lynch syndrome it will be a shock but that will entitle you to lots of screening and catch cancer early! Your mind will be all over place this get a note book right down lots of questions for your cns. I wish you the best of luck on your journey let us no how you get on xxxx

Hi Rowena,

I have been given the Mirena Coil to deliver my hormonal treatment and apart from the procedure to insert it and some discomfort for a few days after I don’t feel too bad with it. (Though, I could eat from now to eternity and not feel satisfied.)

I have been lucky with my doctors as they have supported my decision to go for hormonal treatment in the first instance and  see how my repeat biopsies at 3 and 6 months look.

I am wondering if this is attributable to the fact that I was already undergoing fertility testing and I am sorry that you haven’t found your team as supportive.

Hopefully you will get on well with the hormonal treatments and the effects will settle with time.

Here if you ever want a chat,

Tor

Hi Tor36 and welcome to our little corner of the Online Community. Here you'll find a lovely group of supportive ladies who have all been exactly where you are now. Any cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.

I see one our ladies who had undergone genetic testing has already been in contact with you.

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions.It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer I found it invaluable in my journey. 

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section. 

Sending you welcoming hugs, B xx 

Hi Xxnataliexx,

I don’t think anyone can be prepared for the news that they have Endometrial Cancer in their 30s and dealing with all that goes with it both emotionally and physically will be a long process. I hope things are going ok for you.

My partner and I would still like to have kids but that is now an even more complicated process so we’ll need to see how things go with my treatment.

I’m positive that I’ll go ahead with genetic testing as both of my parents have had cancer diagnoses and I think I’d like to know if there is a genetic reason that I have developed the same cancer that my mother had. 

I don’t have any burning questions at the moment about my treatment but I think that is because my brain is too overwhelmed to think of them and the doctors don’t have any set answers for me so I’ll see what the next lot of biopsies say and go from there.

Xx

Fingers crossed for you and your partner! Good luck with your genetic testing a cancer diagnosis is an awful time in a persons life but hopefully we will come out the other side of this stronger people xxx