Immunotherapy support

Some ladies in this group are currently or about to undergo immunotherapy treatments for their endometrial cancer. 

Here is some information on immunotherapy

What is immunotherapy and how is it given? | Macmillan Cancer Support

Jane

Hello, had my first infusion of Keytruda today. No problems really, the nurse said that will have it for as long as I tolerate the side effects, max 2 years. At the moment feel ok.

Start on the tablets tomorrow.

Good to hear

H

Hello MHML

I am glad that it went ok today.

We have recently started a thread for ladies undergoing immunotherapy in the hope that it will be of help to others. 

I will pop a link in case it is of interest. 

(+) Immunotherapy support - Macmillan Online Community

Good luck with starting the tablets tomorrow and I hope that any side effects are manageable. 

In the meantime we are here if you need anything.

Jane

Thanks a lot Jane, I will be using the link in the future. Today I am a bit up the wall!

Hanna

Its fine to post separately if you prefer- just thought I would mention it. When people start to use it then hopefully others on the same immunotherapy can share experiences. 

I hope you have a restful night and feel ok in the morning.

Jane

Thank you,I’ve just come across your link. I’ve been on immunotherapy, Dosterlimab, for just over a year. I was diagnosed with endometrial cancer in January 2023, grades 1 and 3. They subsequently arranged for genetic testing and diagnosed with lynch syndrome. I had an abandoned hysterectomy in February 2023 due to them finding growths in my vagina consistent with known disease and my left ovary “ tethered” to my bowel. I was started on chemotherapy for 6 treatments in May/ June 2023 and then I had 5 fractions of radiotherapy to control the bleeding which it did. At the same time my diagnosis of lynch syndrome was confirmed so I was started on immunotherapy December 2023. My cancer has since remained stable and no further evidence of disease progression so thankfully the treatment is doing its job. My cancer is stage 4 but 2 years on I’m feeling ok . 

Good morning, thanks for sharing your experience.  Good to know that you have positive outcome of the treatment, did you get any side effects? I am just starting my immunotherapy journey so it is a big unknown.

Good morning, the only noticeable effects I’ve had have been joint/ muscle aches but nothing that’s stopped me from getting on with everyday activities . I wish you well with your treatment x

thanks a lot, really encouraging!