Immunotherapy

Hi Ronny

I am sorry to hear that the chemotherapy was not as effective as it was hoped. 

I have not had immunotherapy myself but there are other ladies on here who have. Hopefully someone will come along soon and be able to share some more specific experiences with you. 

The link will take you to previous posts in this forum concerning immunotherapy.

Macmillan Online Community

Do you know what kind of immunotherapy it will be? 

Here is some info that may help.

What is immunotherapy and how is it given? | Macmillan Cancer Support

Targeted And Immunotherapy Drugs For Womb Cancer | Cancer Research UK

Jane

Hi. Sorry to hear that the chemo hasn't worked. They're maybe going with immunotherapy as it's targeted to your type of cancer and not a "one size fits all "like chemo. I was diagnosed in Dec 2020 with stage 4b endometrial cancer. I had 5 rounds of carboplatin/taxol then a full robotic hysterectomy.Then a further 2 rounds of carboplatin only. My scan after that showed complete response (september '21), however by December 2021 it was back in my lungs and liver. I then had hormones which reduced the cancer in my lungs. They were just rollng out keytruda and lenvatinib at the time, so I waited until July 2022 until it became available to me. I was on this regime for 18 months. Keytruda every 3 weeks and 2 lenvatinib 10mg each tablets every day. It made my cancer stable, CA125 down to 6 from 180 and although it made my blood pressure soar, and total destroyed my thyroid function it worked. Yes there were side effects, I lost 3 stone as I wasn't really hungry . I was also tired out by midday and ached as I took them in the morning at first, but then I took them before bed so that worked really well. Unfortunately in January 2024 I had protein in my urine and had to stop this treatment. I'd been on it for 18 months which I am told was rare to be on it so long. I have had no treatment now for 12 months as although yes, there has been progression but it has been slow and I haven't had any new sites of cancer. I am starting carboplatin and caelyx next week to see if we can halt the progression or have complete response again. I don't feel ill, I have no symptoms. For me immuno was a positive thing and it depends on your tumour markers which one you are offered. Good luck. I hope it works well for you.

Heather