What am I? My cancer status.

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Hello everyone,

I'm doing okay after my TAHBSO operation, although my belly button is agitated!

I've seen another consultant at the Edinburgh cancer centre and I'll be having 3 sessions of brachytherapy to make sure there are no cancer cells left behind.

I'm not sure yet when this will be, but it got me thinking....

I had cancer, we know that and the hysterectomy was to get rid of it.  It was stage 2 hence the brachytherapy happening.

So what do I call myself?  Am I still a cancer patient?  Or a recovering from cancer patient?  Am I back to normal?

I know to some that labels aren't important.  But I feel I need the right words if someone asks about me, or as many do, why I'm not working.

thanks

Pendle.

  • The belly button is often the last place to fully heal as it doesn’t get the air, bless you! For me I’m almost three years post op and usually refer to myself as “having had cancer and treatment”, ie in the past tense, and say “as far as I know, I’m cancer-free” but if the need arises, I’ll play the card and say I’m a cancer patient as having cancer to me is a bit like the Hotel California - you can check out but never fully leave. 

  • Hotel California - love it!

  • Hi Pendle,

    I am 2 years post treatment and just tend to say that I am recovering from cancer. 

    I still have still have side effects from the treatments. I am still under oncologist for another 3 years. 

    So for me I feel its accurate. My medical notes have "history of endometrial cancer, chemotherapy, external radiotherapy, moved to patient led follow up Sept 2024" 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • The radiotherapy consultant said that I'd be going back for tests every 6 months for 5 years, so yes, 'recovering from cancer' is a good description too. 

  • Just a quick note to say that what our community champion Jane says is usually what I say. It’s not always necessary to disclose medical information. For more advice on this, you might telephone the Macmillan support line - I did and they were so helpful. 

  • That's such a good question. I don't know what I am either! I'm thinking for me it might change over time, at the moment it's all very fresh in my mind. 

  • Hi. I was literally thinking about this the same time you posted this! “Recovering from cancer” sounds the most appropriate thing to say but like MarmiteFan59, I play the “I’m a cancer patient” card when the need arises.

    I would normally stammer between “I had/have cancer” and it would be so awkward.