Hi, my hospital does a pre-Lynch test as part of the histology for *all* hysterectomies done for endometrial cancer. If that test is positive, they do a full genetic test. My pre-test was negative so that was that, but, because of family cancer history (prostate cancer (my father) and breast cancer paternal grandmother)) I had the BRCA genetic test (negative).
I originally had bowel cancer, and analysis of the tumour removed during surgery earlier this year showed MSI-H, which apparently is a potential indicator of Lynch syndrome.
As a result I was referred to the hospital genetics team and filled in a questionnaire which I'm waiting to hear back from - I have a telephone apoitment set up for a couple of weeks time.
I've subsequently also been found to have endometrial cancer and had a hysterctomy yesterday.
I was diagnosed with MSH6 two years ago, after I had endometrial cancer. I now have large polyps in my sigmoid colon, diagnosed three weeks ago. I'm waiting for another colonoscopy to get them removed. Fingers crossed they are negative for cancer.
I'm still waiting for the histology results from the hystectomy, but think at present they are two separate primary cancers.
I didn't have any symptoms from the bowel cancer - it was diagnosed as a result of my doing a routine bowel screening test.
Then the follow up CT scan to stage that also showed a thickened uterus (again I'd had no symptoms) which was flagged for follow up after my bowel surgery. I had an ultrasound and hysteroscopy which showed cancer cells so have jsut had a hysterectomy & tubes & ovaries removed. I did start to get a little bit of occasional blood spotting recently but nothing major.
That's good to know. How are you feeling after your hysterectomy? I was a bit sore after. It didn't help that I had low blood pressure and fainted in the bathroom. I fell backward and hurt my coccyx. I think that was worse than the op.
