Still waiting for post-op histology, five weeks on...

Sabine, I hear you and feel your frustration and stress over the wait. However, none of us is medical nor qualified to give you medical opinions or advice and admins would delete any that was given. I’d suggest phoning the hospital every day (both the consultant’s secretary and your CNS) and making a nuisance of yourself, explaining the effect on your mental health. I’d suggest that you at least find out when your MDT meet because then that will give you the likely day of the week that you’ll hear.

Hi Sabine, Sorry if this is duplicate advice which you have already tried - but have you asked your GP if they can enquire for you?  Good luck, LR. PS this may appear twice ... I posted it once but it disappeared. This website (sigh).

Hi Marmite, I just wondered if there's anyone with similar symptoms. Yes I know no-one on here is qualified to give that kind of advice. It's the clear cell bit that worries me. I emailed my CNS today, and called the secretary as well. The answer is always the same. They already know it's driving me mad. Hope you are OK. 

The CNS is more likely to know the timing than the secretary - is there a reason why you’re emailing your CNS and not phoning? Emailing doesn’t suggest an urgent need to know - and you’re likely to be competing with umpteen other emails, whereas a phone call would get an instant response. My CNS aim to reply within 72 hours to emails as they’re not deemed urgent. What day of the week does your MDT meet? We usually get our results on the day they meet - I was told I had cancer on a Friday and got my histology results on a Friday, for example. 

She hardly ever answers her phone, she must be really busy,  so I just leave an email. Good idea about asking when the MDT meet, that might give me a better indication. Thanks, Marmite. 

My CNS work 8am-4pm and if they’re at a meeting or with a patient it goes to answerphone and they call you back. I know as I used to call several times a week for support.  I’d suggest trying phoning at different times of the day or leaving an answerphone message if you have that option as it implies more urgency than an email. How did you hear you had cancer - was it by phone, letter or in person? Amanda 

Hi Amanda, 

Yes, that's a good idea. I'll do that. 

I was told in person on 4th August, by the doctor/surgeon who performed the op. 

That would suggest that your MTD day could be a Thursday - so tomorrow would be a good time to make a nuisance of yourself lol 

Ah, well done, Miss Marple. You're right. It might well be. Fingers crossed I will get some answers tomorrow. Thanks for all your support, Amanda. Xx

Hi Sabine you must be pulling your hair out by now. Gosh it is taking far too long......have they lost your results?  Stress to them that it's affecting you mentally and emotionally and  you are becoming consumed with fear of the results.  Well you know you may have to exaggerate but probably most of this is true?

Surely they wouldn't give you timescale and then it's double that time.

My results were about 3 weeks and surgeon said about 3 weeks.  Fingers crossed they get back to you soon. We're all holding our breath with you hun  xx