Total hysterectomy on Tuesday

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Hello Everyone, I’m having my op on Tuesday - can’t wait to have it out, quite frankly. What a couple of months it has been, mastectomy and now hysterectomy, you couldn’t make it up! Last week the gynae surgeon said that the breast cancer was almost certainly secondary because the endometrial cancer must have metastasised (which was news to me because the BC consultant told me it was primary, and so I couldn’t be bothered to argue the toss with him!) He also said that I might not have a sarcoma because the biopsy was inconclusive, and if it was, it must be the least aggressive variety. Now I don’t know what to think..so I don’t! I’m sure all be be revealed when it’s removed and studied. I saw the BC consultant the next day (yes, I see both consultants every week, different hospitals) and I told her what he had said. She reiterated that it was a primary cancer, and unrelated to the primary endometrial cancer - apparently they want to do some tests on my DNA etc to see why/how I could have two primary cancers appear simultaneously as it’s very unusual.

  • Wishing you all the best for today

  • I had my total hysterectomy, with all the trimmings- ovaries, blah blah on Tuesday. That sarcoma -if that’s what it is - had grown all around the outside of the uterus too. They got it all out, went through all my bowels and checked my bladder - no spread, and the surgeon said he was very pleased with the op.   I’ve got a massive abdominal cut, all the way up, slightly past my navel. I came home on Friday, now shuffling around, but definitely feeling a bit better, which I’m pleased about because I’ve had two surgeries in less than a month. Got to get the clamps removed next week, and while I was in hospital I had a call from another hospital (I’ve been going to 4 for various things) to tell me the date of my first BC chemo consultation in a couple of weeks -I had a letter about my BC, triple negative, primary and completely unrelated to anything uterus. Got to lie down now - feeling very tired and windy!

  • Former Member
    Former Member in reply to Fridgelicker

    Hi Fridgelicker,

    Good news, I bet you're relieved. Take care of yourself and let yourself be looked after.

    A x

  • Former Member
    Former Member in reply to Fridgelicker

    Brilliant news that you are all sorted now and the BC was not related to the EC. You have been through alot in the last few weeks, I think you are incredible. Be careful not to over do it.

    Hugs Robin x

  • Good to hear this. Rest up be kind to yourself now xx

    Madesp 
  • Great news,  rest up and don't over do anything two major surgeries in a short space of time bet you're relieved it's all done xx

  • Hi FL, how are you doing after your op? Coping OK? x

  • Hello, not too bad thanks. I can now sleep on my side and it isn’t such a four act drama to get out of bed! What’s been the worst is the antibiotics -Clindamycin- I’ve been taking for a small infection in my breast wound. That seems to have cleared up, but now I’ve got some ooze from my hysterectomy scar, down the bottom under my middle aged overhang.
    I’m having the clamps removed today, and I’m fairly sure they will make me stay on Clindamycin which makes me tired, constantly dry mouthed, and gives me diarrhoea Rolling eyes They will want to clear this up asap, as I have my first meeting with the BC oncologist 19th Nov

  • Former Member
    Former Member in reply to Fridgelicker

    Hi Fridgelicker 

    How did your appointment go today for getting your clamps removed.  I hope you are doing better, bless you. 

    Hugs Robin x

  • Hi Robin, I couldn’t have all the clamps out because I’ve got an infection in the scar, under the underhang - if you know what I mean. I’ve got lots of liquid oozing from a hole about the size of a fingertip. So I’m back on 500g Clindamycin per day, and I’ll have to get the infection dressed every day. Looking on the bright side, at least the nurses aren’t worried enough to refer me to the consultant, so it must be treatable, best wishes, Julia x