Hi All another newbie to the group diagnosed with Serous grade 3 last week

Thanks again MarmiteFan59

Will call tomorrow and update you all. xx

Brilliant thanks Barb for clarifying. Yes I will take every ones advice and call the CNS team tomorrow.

Best regards Robin xx

Forgot to mention until the histology has been completed post op they won't be able to tell you what adjuvant treatment will be offered.

I was stage 1B/grade 3 serous and was only offered 3 optional Brachytherapy sessions. I wish I'd been more knowledgeable at the time as I would have asked for chemotherapy. Less than a year later I have metastases on my liver, spleen and masses in my peritoneum, omentum and abdomen. Thankfully my chemo have reduced then by half after cycle 3, my last cycle this Friday should show even more improvement.

Hugs, Barb x

Gosh Barb Im so sorry to hear what you have been through, this is my worry too.

Having listened to the ladies on the site I will insist on having chemo. Good luck for Friday, i really do hope that you have fantastic results you have been through so much.

Robin xx

Hi Robin - thank you for thinking of me.  It wasn’t too bad, as usual I had been overthinking it and getting myself worried - the preparation beforehand takes the most time, but now I have had one session I’m not worried about having the next 24 lol.  Feeling ok so far (just hope it stays that way!).  Have you been given a date yet? xx

Hi All

Update as promised, after a terrible nights sleep due to so many questions whirring around in my mind, i wrote everything down and called my CNS team this morning. You were all so right and i wish i had  called sooner rather than stewing on things.

The nurse emailed to chase the booking team and they called me this afternoon with a pre op appointment for tomorrow afternoon which is wonderful.

They also booked me in for a drive through PCR test at the local hospital. I still have the date of the 8th April but the hospital that iam having the operation has changed to one slightly further away from my home but it is a small new hospital with great reviews so i couldn't be happier.

One of my biggest worries is not being offered chemo as my consultant only said i would get a burst of radiotherapy 56 days after the op unless its spread. 

I told my nurse this morning about my fear. She was so sweet but did say that i really was jumping the gun and that the consultants never like to over whelm patients talking about things that might or might not happen several steps away. She reassured me that it is very usual for patients with grade 3 serous to have chemo included in their treatment plan and that i would be included in those decisions together with the  MDT when they review the operation biopsy results. I will be pushing for chemo Barb and Maddy that's for sure.

She said that my CT scan didn't show that my lymph nodes were enlarged so they will only be sampling a few rather than taking most or all of them. 

I feel like a weight has been lifted now after having such good news today. i really was the best advice girls to call the CNS team as she could read my notes and answer all of my questions, i was told the slightest worry im to pick up the phone and ask the question no matter what it is rather than worrying.

Between the CNS team and you lovely ladies i feel very blessed to have such wonderful support during this nerve racking time.

Big hugs Robin x

Hi Robin,

So pleased you have some answers, as it's so easy to overthink things. As  your CNS  said, contact her with any question it's what they are there for.  I have been truly overwhelmed with my CNS  who has made this journey so far much more bearable by answering my queries no matter  how trivial they may seem. Being informed definitely helps me feel more in charge/ involved in my journey. Good luck with pre-op etc x

Hi Robin, so glad you picked up the phone and talked to your CNS, and that you’re feeling a bit better about things. Honestly I’d recommend not hesitating next time - mine know me well and are always pleased to hear from me. They’ve said more than once that they’d rather people talked to them when they were a bit anxious than leaving it till they were climbing the walls! I’d just like to mention something as you’ve kind of mentioned it twice now: you’ve mentioned that you “will insist” on having chemo and “will be pushing” for having chemo, which seems to suggest to me that you may have some doubt in your mind about being able to trust the recommendations of your medical team. I’d advise caution about possibly being influenced by the experiences and decisions of other people. Having chemo is no guarantee of recurrence and in some instances doesn’t statistically improve things very much at all especially when compared to possible side effects. I’d recommend doing your own research and gradually compiling a list of questions that you can put to your oncologist later on. What will likely happen is that you will have your hysterectomy, then see your consultant a couple of weeks or so (mine was two weeks but others waited four to six weeks) for the results of the histology and an initial brief explanation of your treatment plan. You will then receive an appointment to see your oncologist, where you will receive a more detailed explanation of the suggested treatment plan, have a chance for questions and have a consent form to sign, acknowledging the possible side effects. So it will be a while before you have to think about it in detail. I’d encourage you not to make any hard and fast decisions now, but to research and hold things lightly for a while. 

Hello all i have not been on for a while as i am just ticking along nicely ( thankfully ) i thought long and hard before this reply as I am always concerned of saying the wrong thing and causing unnecessary upset. I was diagnosed Serous and had radical hysterectomy the full works. my comments here are With the regard to ' chemo or not to chemo' so thought I would chip in as my Surgeon couldn't understand why I was offered Chemo by the oncologist because she new she had took everything away that was necessary to give me a clear margin. This was based on the fact that my cancer had 'only' progressed 50% into the wall of my womb so contained and there was no spread so I was graded 1a The oncologist and the CNS felt a mop up appropriate as Serous was high grade but I was given the choice. I decided to go ahead and was offered 3 sessions or Paclitaxel  / Carbolatin ....Unfortunately  I was one of the few that had a bad reaction and wasn't well enough to have the second when it was due and it was agreed to stop treatment. It was my decision and I could have continued but the Oncologist said she thought that in my case the negatives Far outweighed any positives to me and as the surgery had been a success she agreed no further treatment. This was Last September and my health is generally good though I still have a few niggles with neuropathy in my feet and legs but it is easily manageable. My hair is growing back very curly ! I walk 10.000 steps a day and generally life is good. The point I am trying to make is everyone is different and every situation is made on an individual basis. You can only make a decision when you have all the facts based on you.  As Marmite fan said Chemo still doesn't give a guarantee So I made my choice to fit me at the time and I will Face whatever comes my way in the future. I wish you all well x sorry for long post LOL Take Care and stay Positive...Hugs to you all x

Hi NannyJanet and MarmiteFan  Thank you for taking the time to write and you have both definitely given me food for thought and a very balance picture..

I suppose its a characteristic of mine to make up mind about something very quickly and go all out to and make it happen.

I think that Im learning new lessons with my cancer and will try to take the advice to slow down and concentrate on the stage in hand and trust that my MDT will know whats best for me based on their finding.  

Thanks again Robin x