Hi all
I got told on 9th September that I have womb cancer but I haven’t been told anything else. I have had a transvaginal ultrasound in July which showed the lining of my womb was thick. I have had a biopsy done and a coil fitted in August. They sent me for a CT scan on 15th September and I am now waiting for the results. Is it normal for them to do a CT scan before telling me what stage I am at? I am terrified it is going to be bad and they can’t help me as they weren’t expecting to find it because of my age. I have had heavy periods and bleeding pretty much all the time for years but my GP have never been bothered about it but now I worried it’s been cancer this whole time. I feel so anxious and can’t help but think I’m going to die, my grandad died of pancreatic cancer in July and we only knew a week and half before he died that he had it. I know it’s not the same but can’t help but think the same is going to happen.
Thanks
So glad to hear from you Bella glad you are doing well xxx
Hi Natalie, I am doing well thank you, it’s been a long road but it’s no where near been as bad as I expected. Really pleased that it’s my last day tomorrow. Looking forward to getting off the treadmill and back to some normality. I had another CT scan after my chemo had finished and it was completely clear. Thank you or all your help when I was first diagnosed. Really Hope you are doing okay xxx
Am really glad u are doing ok! That’s great news that your scan was clear best of luck for the future xxx
Hi Rach_E and a warm welcome to the Online Community where you'll have realised by now there's a lovely group of ladies here to reassure and support you through this scary time. I'm sorry I wasn't around to welcome you yesterday, I tend to post mid-morning through lunchtime as hubby moans I spend too much time here (he moans about everything!) but as I've developed RSI in my shoulders and arms I'm trying to limit my typing!!
CT & MRI scans can reveal the presence of a tumour but it's normally after a hysterectomy is done the tissue is examined and the stage/grade can be confirmed. I was diagnosed as Stage 1A/grade 1 after biopsy, CT & MRI scans. After hysterectomy I was regraded to stage 1B/grade 3 serous.
I'd never heard of Endometrial cancer but slight spotting post menopause had my bestie nagging me to see my GP. So I thought it was an "age" thing but younger ladies have also been diagnosed as well. I'd always had painful periods, never had children and sailed through the menopause with nothing except hot flushes. So it was a bolt out of the blue and I'm the first member of my biological family to have had it!
I'm very sorry to read about your Grandad passing away so quickly after his diagnosis, his was a completely different aggressive cancer. Ours is a slow growing variety. Take some comfort in what Bella H wrote that something might've been there for some time. (Nice to see you again Bella H)
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey.
Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.
You might also find this link to what to take in my overnight bag useful for when you have surgery.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00 8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .
There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.
Sending you welcoming hugs, B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
I had both an MRI and a CT scan before my op in December last year. I think they like to know what they are dealing with before they start surgery. The stage won't really be confirmed until after op. It's normal to worry and think like this. I certainly did. This forum is really helpful for good advice and experience
Thank you everyone you have all been so nice. I’m an over thinker anyway which probably is not helping and I have a huge fear of dying so it kicked that off so that’s not helping, fingers crossed it has been caught early but when you over think everything the waiting doesn’t help x
Hi Rach_E. You're not stupid, yes they'll be able to help and yes your anxiety is in overdrive! Don't worry, we've all been there. The waiting for results is the pits.
Hugs, Barb x
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"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
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