Hope I got the right place to post this

Hello Womb Yes, you've reached the right place! Welcome to our little corner of the Online Community. Here you'll find a group of very supportive ladies who know how you're feeling as we've all been there ourselves. A cancer diagnosis will bring many questions, lots of confusion and stress but I found being able to talk with other people who are on the same type of journey helped me a lot.  

It also helps to take a few moments to update your profile then others in the group will find out a bit about you. Then you won't have to keep repeating things you've already written. If you want ideas, click on my name .

I think the constant tiredness is due to anxiety and stress and it doesn't help when you're being strong for your family and you need someone to be strong for you, well we're all here to hold your hand and listen. I also understand how very hard it is to lose weight (it was me who suggested a Tefal soup maker as an aid to weight loss )

I found the Macmillan Guide Understanding Endometrial (Womb) Cancer booklet was invaluable on my journey - you can download it here https://www.macmillan.org.uk/cancer-information-and-support/stories-and-media/booklets/understanding-womb-endometrial-cancer.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.

Sending you welcoming hugs, B xx  

Thank Mrs BJH 

That soup idea sounded great by the way ...we are currently waiting to move into our own bungalow as we are living at my mums at the moment we are hoping it is going to complete within the next few weeks. Mums house is a bit like the house that Jack built it needs so much doing to it and we dont have a working oven at the moment so once we get moved into the new place I think i will stand a better chance at getting a handle of the weight loss.

I am just worried that the more time it takes to get this weight off the more risk there is and the more time there is for this to get worse but I have my 2nd hospital appointment today so there going to check the coil is doing what it should and hopefully see how much its grown since october if any they did say it was only early stages of endomertical cancer so im hoping that time is on my side.

Its nice that we can talk on here and I am greatful for any and all advice anyone can give me at the moment to keep my spirits up I am planning our wedding we have set a date of 1st of october 2022 hopefully the world will be back to some kind of normality by then and also it gives me something to aim for with both the weight and the operations.

I am hoping they are going to explain more to me today when i see the gynacologist in person as the follow up and result were given over the phone in october.

Thank

Chrissie 

Hi Chrissie

Let us know how your appointment went today, so much better to meet the gynaecologist face to face, even if they are wearing a mask. Hopefully the coil is doing its job. I think I've read about other ladies here having coils fitted so to bring your queries to the front page it might be a good idea to post a new thread asking if anyone else has had a coil fitted. Very soon you'll be finding what a lovely supportive group of ladies are here to hold your hand or just listen if you want a rant. 

From what I've read Endometrial Cancer is generally slow growing so take comfort from that. It's great that you've a goal to aim for and once you move into your bungalow you'll obviously be more settled.

Sending you hugs, B xx 

Hi Christie, I hope you had your check up today and that all is as well as it can be.  I do hope you managed to tell your team all that you mentioned in your post above. You are trying to cope with so many things at once I’m not the least bit surprised you feel tired out.  I think a lot of us here have, like you, tried to put a brave face on so as not to upset our nearest and dearest. But actually they are the ones now who need to be strong to support you as you are trying to come to terms with a massive event in your life.  When you are having a bad day let them know and tell them you need them.

Feeling tired like this can sometimes be a sign of depression, maybe you need to see your GP to see if they can help you get through this very rough patch. You say you are struggling trying to lose weight, but from what you said I’m not surprised. Think about it, you said you know that when you hit target you will lose your chance of having children, something you’ve always wanted. So it’s not surprising that  deep down you don’t want to reach that target weight.  Please don’t beat yourself up, feeling guilty about stuff.  It’s hard enough going on a diet without all this extra baggage you are having to carry.  

So, I really hope you were given some reassurance at your check up today and that you can "keep on keeping on".  Come back to this forum whenever you need to vent anger, or get some information or support or need to get things off your chest. Let us know how you’re doing,

Take good care of yourself, and at least you have a wedding to look forward to in the future and a move into your new home soon

Viv x

Hi Jigsaw33

Thank you for your reply It help that I know the tiredness can be normal.

So went for the check up today to be told when i got there by my consultant that he couldn't do it as they have had some issues with the machine or something so i got all the way there to be told basically it was a waste of time.

I spoke to the consultant he doesn't seem to think its linked to the cancer the tiredness but maybe due to the stress and worry more likely.

In regards to the family thing I am afraid as soon as mum found out about the diagnosis she started acting like this was my last Christmas she has heart problems and has a pacemaker and she basically did nothing but cry and get upset every time she spoke to anyone about it or told family and friends.

My dad and his wife were quite emotional and dad suffers from depression sometimes dad also has heart problems he had a stroke about 5 years ago so I'm worried about how it  will effect him if he sees i am worried about it.

My big brother I could tell was struggling with it and trying to get his head round it although once i explained it to him and the plan of action he has gone on the positive about it but I can see straight through him I know deep down he is very worried and he suffers with Anxiety and panic attacks

So a few weeks after I told them all I have had to go on the offensive with positivity cos i cant stand to see them worry so much I do have my fiancée and he is really good I can talk to him when i am worried sometimes but I worry about the stress it puts on everyone but he is more practical about it.

When I spoke to the consultant we talked about my weight he wasn't very happy as I lost about a stone before Christmas and I've put it back on over Christmas he seemed to be a little fed up with me by then so I am really no further on with this.

I see what you mean about the weight thing maybe subconsciously it could be that my brains fighting with itself about needing to loose the weight to get the operations I need but once I get there then any chance of a baby is over.

I do feel guilty about it all I have to now wait for another appointment to come through he said it would be next week or the week after so yeah I'm kind of no further than I was  about how its going now.

Chrissie 

Morning Christie, what awful luck to get to the hospital and have that happen.  Just when you need all the support and reassurance you can get.  The waiting before the op is always hard and you have such a lot on your plate at the moment.

I can see why you feel you need to be brave in front of the family, seems like you feel a lot of responsibility, and want to take care of everybody else.  Do you have a friend you can unload on? Have they given you a CNS contact? They are very kind and patient and will always listen to all your worries.

I am not overweight - well I am, but it’s only about half a stone - but I know as soon as I try to diet all I can think about is food. So maybe changing tack might help you. Instead of thinking about "losing weight" try thinking instead about getting a healthy lifestyle.  So make sure you go for a walk every day, slow at first but gradually speeding up so you go further and faster. Do you have a sweet tooth , or are crisps your undoing? Are you a grazer? Maybe if you can identify your habits you can start changing them.  When you are in your own home you will be able to control what’s put on the table!

Sorry if I am stating the blinking obvious, just want to try and encourage you to keep on going. And when you see your team tell them all your worries and stresses.  In the meantime take care and look after yourself

Viv x

Hi Womb,

Trying to lose weight when you have all the worry of cancer and of losing the chance to have children is putting a huge amount of pressure on yourself.

Definitely agree with Viv's suggestion to think about having a healthy lifestyle rather than being on a diet to lose weight. I've been overweight most of my adult life but decided about four years ago, with a BMI of over 50, that I would take each day as it came and try eating more healthily and take a bit of exercise. I didn't beat myself up when I ate some chocolate or a biscuit but ate less or more healthy food in the days that followed.

I signed up to NHS Health Unlocked Weight Loss forum https://healthunlocked.com/weight-loss-support and found the folk in there a great crowd. After I'd lost a few pounds I volunteered to run the Saturday weigh-in, which encouraged me further - I can definitely recommend the group if you are looking for ideas and support on your journey. I know how hard it can be, and your cancer diagnosis must make everything harder to bear.

Take care, stay safe,
Dx

Hi Womb,

When I was 57, now 76, I was diagnosed with high cholesterol and overweight. Was told I would have a stroke before I was 62 if I didn't do something about it. That was enough to scare me silly and to act. I started to look at food labels, and anything with a fat content of over 4% I didn't touch.I also cut sugar out. I used sweetners in coffee instead of sugar. Ate cereals without sugar,changed to diet lemonade etc. I lost weight without really trying, and got to know what I could eat without constantly studying labels! My nurse told me that you could have a 'naughty 'weekend as long as you got back to the diet on the Monday. You will find that if something tastes nice then you shouldn't be having it!!! You just have to change your way of life. 

It was at this point in my life that I threw away the chip pan, and I now monitor how often we have oven chips (not so much fat). Good luck xxxx