Ct scan

Hi Michelle. I'm so sorry you have received this news. I know you have been brought down by it but please hang on in there and try not to think the worst. Although I have not been through chemotherapy myself I am sure I have read somewhere that there are different regimes and if one type doesn't work they sometimes switch to another which may make  difference. As you say it's now another period of waiting around to see what the plan is...and I'm sure your team will have a plan for you. Please try to keep positive and not dwell on this setback, although that's easier said than done I know. Keep yourself busy, try to find three things to be thankful for each day and keep in touch here. We are all with you willing you to overcome this obstacle and I'm sure you will hear some more positive news from your team soon. Love and hugs, God bless. Lamb.xx

Hi Lipgloss, (MIchelle)  is it secondary from your womb cancer like mine is ? or is it a new cancer ? I have found Lung cancer and endometrial cancer to be very different beasts with very different treatments. My lung tumour became immune to chemo, they tried Anastozole (hormone tablet) hasn't worked for me either. Just  spoke to my non empathetic oncologist today and yet again feel totally written off by her, she did the same when this was diagnosed back in November, a shrug of the shoulders and that was that. Oh well I still have hope and for that there really is no cure ! 

Here if you need to chat,

Much love, and gentle hugs of hope.

LC

xx

Hi how bad is it I'm not sure if it's secondary or not. How many sessions of chemo did u have? And how many hormone tablets did u have hun xx

So do they have another plan for you? Xx

Michelle x

OOh Michelle,

I'm so sorry to read this. Its not something I know much about, but I bet does.   xxxxx

Hi Michelle, I  had 6 sessions planned but after 3 I became quite poorly, that's when I became immune to the chemo. You need to ask what cancer it is really ? if it is a lung cancer it will be treated completely differently to womb cancer my lovely. Then I had 3 months of hormone tablets, I think mine is quite aggressive. NOT asking for a prognosis just going to try and get through each day with a smile if I can. No other plan, my care will be community based now, I have a wonderful team surrounding me (It somehow feels like a release ?) and am doing all I can to bring my immune system up to speed, my thoracic surgeon said he wouldn't put bets on me not surviving this !!!!! 

PM me if you want to chat privately.

Big hugs 

LC

XX

So sorry you find yourself in this situation. I am keeping my fingers crossed for you for a more positive outcome. Keep us posted xx

Hi Michelle 

I don’t pop into the womb group very often these days and my memory isn’t brilliant. I think I remember talking to you previously? Excuse me if I’m wrong. 

I am going through chemo for secondary cancer after the womb cancer spread to my liver, lungs and spine. It’s the spine tumour that is giving me the problems - it’s causing a lot of pain - although the liver rumours are the largest. I have no symptoms from the lung tumours. 

I am being treated with chemo that is known to hurt womb cancer because all the cancer cells are womb cancer cells. It’s not lung, liver or bone cancer. I am in hospital right now because of pain caused by the spine tumour. I have just had a scan and that will show if the chemo is working or not. If it is then I’ll carry on with the chemo. If not I’ll stop and enter palliative care as this is the last treatment available to me. 

But regardless, I know I won’t be cured. Once the cancer has spread to other organs it’s incurable. The best doctors can hope for is to control my cancer. I am considered to be treatable but not curable. Once they can no longer control the cancer I will move to being a palliative care patient. I think that’s what’s happening to me. I’m in the process of moving to palliative care and I am talking to various teams here about packages of support to keep me going at home. I’ll have carers in to help with meals and housework, for example. 

So you see it’s really quite important you understand if you have secondary womb cancer in your lungs or primary lung cancer. The treatments are quite different. 

Are you able to have a chat with your consultant to find out if it’s secondary cancer or primary? It might help to read this information here on secondary cancer 

https://www.macmillan.org.uk/cancer-information-and-support/secondary-cancer

Please understand that I can’t tell you what kind of cancer you have. I’m not a doctor and I am not your doctor. If it is secondary cancer there are other support groups in this community where you could get more information and help. There’s a secondary lung cancer group  I hang out mostly in the living with incurable cancer group which is a lot more fun than it sounds. The current hot topic is pot noodles - which flavour? 

I do hope this is helpful although i suspect it’s just terrifying on first read. Take your time. I do believe knowledge is power but sometimes it’s not easy gaining that knowledge. 

with love and hugs 

xxx

Hi daloni thank you for the reply to Michelle.it was helpful.for me as well. I joiined the incurable group a couple of weeks ago, takes a lot to come to terms with but it's helpful to know there are people out there that really do understand.

LC

Xx

Hello Michelle 

That news must have been very hard to hear.I think and LC have offers some helpful words of advice and support. I hope that your team can find out exactly what type of cancer it is and that they’ll have a plan ready to discuss with you when you meet with them. I know nothing I say can make you feel any better so I’ll just send you a gentle, supportive hug. You are in my thoughts and prayers x

Hi

I am glad it was helpful and of course we have chatted in incurables. I’m about to go over there to reply to your latest. Hold the line, caller...