What after effects has anyone experienced after vaginal brachytherapy?

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I had a successful operation for stage 1a grade 3 cancer  in mid  November 2019  Inc removal of lymph nodes. No sign of cancer found anywhere else just a cancerous  polyp hanging down from the too of my womb. MDT advised radiotherapy due to the type 3 cancer and I was discharged to an oncologist who advised me to have a course of brachytherapy at the top of my vaginal vault. I had the radiotherapy in mid January (2 X2 sessions over 2 weeks) and it all  went well and I have not had any discharge. 

 I was fortunate to have my first check up in person just before lockdown. The only issue I was experiencing was a uncomfortable combination of constipation and flatulence .I mentioned this  to the oncologistt who dismissed it as a possible side effect of brachytherapy and just said I needed to drink and exercise more. He gave me a quick internal and said it all looked fine . But he was very behind on his appointments and very rushed.  I was in and out in 5 minutes.

Obviously exercise is difficult at present but I am no couch potato and drink plenty of fluid. Yet the problem of constipation and flatulence continues.  I am not having sex but am using  a size one dilator regularly, (not every day) .  I realise I may be clutching at straws here.but the discomfort seems to be worse for 24 hours after a session with the dilator. It also makes the top of my vagina feel sore internally. I am thinking of stopping with dilator for a few days to see if maybe the dilator is irritating my bowel area in some  way and causing the problem. Anyone else had similar problems?. My impression is hospital staff downplay the after effects of vaginal brachytherapy. 

  • Hi Galanthophile I think we have spoke before about Brachy. I'm about a year on and I have begin to have more spotting and to me I feel as though my vagina is narrower. I'm wondering if the top of my vagina has further narrowed. That's why I bought some others that I'm finding more comfortable and I am using both 3 & 4 dialators.  I have been interested to read on this thread the view that some ladies think that the medics easily dismiss the side affects of Brachy. I have been diagnosed with chronic late affects of radiation - radiation proctitis however I think it is a given that most will have acute side effects that resolve over time.  Stay safe Dawn xx

  • Largest dilator gives me the heebie-jeebies just looking at it.....I suppose the scratchy feeling I have  at waist level could be scar tissue from the brachy not remaining stitches. Internally using the dilator does not hurt and I have not yet lost any grey skin as a discharge, which the nurse warned me to expect, nor had any bleeding.  The oncologist examined me internally on March 9 and said everything looked fine.

    Of course I  am only using  the smallest dilator at present but  I did manage to use next size up recently and  it hurt on entry but not in use .  Fhe worrying thing about brachy  is not knowing what any long term side effects will be. 

  • Hi Nightingale 19, yes it does look daunting. I was told at my post radiation check up I should be using at least 2 or 3 scary lol. I have, in the beginning, a grey watery discharge but not now. I haven't spotted often but I read the Christie Brachy leaflet and it says that spotting is normal unless heavy blood or smelly discharge then contact the hospital. Bowel and bladder disruption is a early side affect but this should resolve in about 3 month. Unfortunately for me I have developed chronic side affects but they are becoming manageable. Stay safe Dawn x

  • FormerMember
    FormerMember in reply to nightingale19

    Hi re the dilators.My radiotherapist told be to go up the the size 2 which I am now using .  Presumably because my vagina isn't as big due to the hysterectomy last year. This is follow radiotherapy due to a recurrence.  A  little bit of discomfort but I find it easier if I slather Epaderm cream first . I use this twice a day anyway to stop and dryness.  Works wonders .Then use the dilator with the lubricant smoothed over it rather than a blob on top which works much better .  Radiotherapist also told be when inserting not to try to push in .  Rather insert using little twists and remove twisting the opposite way .  This stops you catching and tearing the skin especially if you are quite dry .

  • FormerMember
    FormerMember in reply to FormerMember

    I was also told that at long as I could manage the size 2 it was fine, although they asked me to try to go up to size 3, which I can now do.  The size 4 looks scary and the nurse laughed and told me not to worry, I didn't need to use that one. It's now a year since my treatments finished (celebrated last week).  I still get a bit tired and sometimes when I need the loo I need it now.  Other than that I am absolutely fine.