Why??

Oh nina, I'm so sorry you have received this news and now have to undergo further treatment. As you say, there is no answer as to why these things happen but although this promotes further worry and anxiety at least they have done their job thoroughly and found it and are taking the precaution of treating you in case it has spread. Once again you are going to have to draw on your inner strength to get over this hurdle and you will and we are all right behind you supporting you. Take care hun. Love and prayers. Lamb.xx

Oh Nina I am so terribly sorry to hear  this.  I was stage 3 grade 2 and my surgeon was hopeful that I only needed RT.  Then they found one cell which couldn't be ruled out as cancer or indeed ruled in ( hence the name little critter) you will have a huge bag of emotions to come to terms with. Take your time, see what plan  your team have for you, talk talk and talk some more. It is so daunting but as I was assured when I came to this forum it is doable.

Sending you a gentle hug,

LC 

X

Nina60 so sorry you have been told this.  I too thought I was out of the woods as my tumour was contained and less than halfway through the uterus wall so was a Stage 1a but they found LVSI - Lymphovascular space invasion - where a few cells were in the lymph system I believe, although to be honest I still don't quite understand it as I couldn't understand what the consultant was telling me (heavily accented) and I did Google but scared the life out of me so stopped researching further!  I needed 25 sessions of radiotherapy plus 2 brachytherapy, luckily no chemotherapy.  I've just had my 2 year check up and so far so good, but I do feel very uneasy about it all being a dreadful worrier doesn't help.  

I hope all goes well for you with your treatment.

Hugs, Lesley xx

Oh Nina,

So sorry to hear this. At least they have picked the fact up and have a plan. My own daughter had to have chemo for breast cancer. For 5 days each round she was laid flat and in spite of anti sickness pills, felt very sick. It wasn't easy for her. BUT 6 years on she is fine, and no further signs of trouble.

My fingers and toes will be crossed for you. XXXXX

Oh Nina,I can only echo what the others have said. This is rough news for you. I am coming towards the end of my radiotherapy (stage 1b grade 3) and it's not been too bad so I hope all your treatment goes well.

The support and care of those on this site is amazing and inspirational and we shall be right there for you

Shinygal

Oh nina, I'm sorry to hear this update.

Wishing you all the best with your further treatments. 

Thank you. I have no idea what is going to happen. Feeling sick and actually being sick is a fear so I’m really not sure how I’m going to cope. And loosing my hair is quite an awful thought. My hair is me. Does that make sense.

at this moment I am just very scared.

Hi Nina,

I found the anti nausea meds were really very good, and I felt no more than a vague occasional ' could feel sick if I didn't  take the meds' feeling. Keep taking them is the best thing to do.

I was hoping it would at least put me off my food a bit, goodness knows I could do with the weight loss, but not a bit of it.

The hair coming out isn't too much of an issue in the event, I found. Mine also was part of how I saw myself, but if you just write it off for a while and get some nice scarves/turbans, it's really quite interesting.  

I'd definitely recommend shaving it as close as you can get when you have lost enough to be obviously patchy, ( it takes a while to be noticeable) or your scalp starts to feel sore as it really falls out. Shaving it off stops that.And I have found being bald quite a statement look. People  have said it suits me, and I actually think it does. Plus you get to try all the looks as it grows back, from the shortest crew cut to letting it carry on growing and stopping when you chose.

Mine is growing back noticeably just 2 months after finishing chemo, and I dont reckon it will be long before it looks like I went for a statement pixie cut.

As others have said, please dont worry, its do able, and over and done with quicker than you expect. X

Nina60, I'm so sorry that you find yourself faced with the possibility of so much more treatment that was originally suggested.  I can still remember how shocked I was when told that I would need  a 5 week course of RT because the histology showed LVSI (which I had never  heard of)  

You have so much to cope with already  - I have been moved by what you have told us about your children.     

You must have many questions to ask your oncologist.  I hope at your next appointment  you will be able to take someone with you to join with the discussion and help process the answers to your questions.  

I  will be thinking of you.

I have my amazing sister in law coming with me. The nurse has said I don't have to worry about making a decision on Monday. They will talk everything through and give me the leaflets to read. I have a friend who is a retired gp who had breast cancer a few years ago. So she is an excellent person to help me think through everything. I didn't even know there are different types of chemotherapy until she told me this morning. 

I have at least 2 friends who have already said they will come and sit with me during any treatment in hospital. One will reorganise work so she can come.

I also have a lovely therapist who I've been seeing for about 4 years now. She is learning everything with me and has managed to keep one step ahead of me on general information so far. And if she doesn't know she tells me and tries to find out. She has lots of contacts. 

But telling my girls is going to be so difficult. I'm going to wait till I have more information as both have difficulty processing things and need solid facts.