Hi all, had the check up with the registrar, here how it went everything ok no lumps or bumps on the external however when looked with light he saw a white patch where the tumor was. He said that he wanted a second opinion because I had a recurrence. He spoke to the oncologist doctor(who I thought I was seeing) and came back and said it was ok and spoke of the high X rays from radiotherapy. He apologised for worrying me but he said he was not has experience as the doctors and wanted a second opinion. Afterwards he sat me down and said I am clear at the moment, they cannot give certainly but for now I'm clear. Stressful, I'm not sure not heard of white patches. A big unhappy sigh from me. Dawn x
I'm so pleased it all went well chickpic and hopefully this white patch will just be a radiation burn and nothing else sinister. So at least you are clear..celebration in order I think. Onwards and upwards to next six month check now. I've got mine next week! Love and hugs. Lamb.xx
Thank you Galanthophile, it was nerve wrecking when he said he wanted a second opinion. Onwards and upwards I'm thinking today. Dawn xx
Hi Lamb, never heard of white patches but the main doctor did not come through to examine me so I'm thinking he cannot be worried. I'm back to see my surgeon consultant in 3 months time. Good luck with your check up next week. Dawn Xxx
Hi Chickpic,
Glad to hear you are clear.
It wouldn't surprise me to know the radiation caused white patches, knowing what it did to my husbands neck. It made his neck like a rock, which took about a year or more to soften up. They gave him a machine which vibrates on the neck to talk, but his neck was so hard there were no vibrations. That's why he was 4 months unable to talk, until he learnt to use a speech valve. His speech and language therapist told us 'Never underestimate the power of radiation'.It did make me wonder how any cancer could survive this. xxxxx
Hi Chickplc,
It all sounds like good news for you. As Nannyanny says, it takes a while to recover from the radiation treatment and I expect your brachytherapy would have been particularly targeted at the tumour area . At my first couple of check-ups after the end of treatment the visual inspections still showed areas of slight inflammation from the RT which they said was quite normal. .
XXXX
Anne
(Class of 2015!)
Great to hear your appointment went well, Chickplc. My doctor could see inflammation from the radiation but they said that was normal at that early post treatment appointment and weren't too concerned. It's good to hear thebdoctor sought a second opinion from his superiors - thorough is the basest way to be. Onwards and upwards to your next appointment now x
Hi Chickpic,
I can't help thinking your white patches are from the radiotherapy. If I give you a timetable of events with my husband I think it may help you understand how destroying radiotherapy is. I think because people can't usually see the results of it they don't realise how powerful it is.
In June 2006 my husband was diagnosed with throat cancer, and had an operation by laser and 7 weeks of radiotherapy. His neck went as hard as rock.
In June 2007 it was obvious he was not recovering. Lots of coughing and unable to swallow properly. They decided to take his larynx out as it was too badly damaged by the radiotherapy, which sometimes happens.
He was cut from ear to ear, and initially his food and drink leaked out of his cuts!!! It took until March 2009 for the skin to heal up, and all the leaking to stop. his neck was soft again by then. They said his healing was poor because of the radiotherapy. So , you see it took nearly three years to get over the effects of radiotherapy. You are very early days, and I shouldn't worry. (I know how hard that is) It sounds as if the first doctor is new to all this. Our GP knew nothing about a person with no larynx, and always jokes about us teaching him!
All the best xxxx
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