Hi I'm new to to this site and having been diagnosed today with early stage womb cancer am wide awake.
I was referred to the hospital beginning of July following a period which I had not had in three years.
The initial ultrasound showed a polyp so I was booked for a heteroscopy however on the day due to my blood pressure i just had the biopsy done.
As the biopsy came back clear it was decided that my doctors would increase my blood pressure tablets and so two weeks ago I had the polyp removed.
Which both my doctors and myself were told was benign.
On Monday i had a call to ask me to come back today.
To be told that it wasn't benign but had cancerous cells.
And so on Friday I am having a hysterectomy to remove everything.
So after telling my family friends and boss everything was ok .
Sorry folks they told me wrong.
So as you can imagine it came as a bit of a shock.
I have so many thoughts and emotions going round in my head
This isn't happening to me.
Why tell me it was benign.
Stay positive.
I'm scared.
And I've lost count of the times I've cried today.
And you know what my first reaction was when the consultant told me
I've got a new car to collect in two weeks.
I'm 50 later this year so I treated myself.
Hi Annie and welcome to the forum although it's a club nobody really wants to join! Having said that you will get a lot of advice,love and support here as we have many ladies of all ages who have experienced what you are going through. Your emotions must be all over the place having been told you were clear of cancer then called up again to say it is early stage. Womb cancer is , to put it , probably one of the better cancers to have as everything is contained and early stages usually means a hysterectomy is all you will need. It's also very slow growing to put your mind at rest because like all of us it will be whirling everything around at top speed. Easier said than done I know but please try not to worry and take it one step at a time. Please stay away from Google unless it is from a reputable site such as nhs, Macmillan or the eve appeal. So much information is out of date of overexaggerated and you will do yourself no good in the long run. The hysterectomy is nowhere near as bad as everybody imagines and most ladies are discharged on paracetamol and ibuprofen. I expect several other ladies will be along soon to help reassure you and we have p!entry of tips on what to take into hospital with you and how to cope afterwards. The thing that gets everybody is the waiting and hanging around for results but try and get some nice things to do and keep yourself busy doing gentle things to pass the time as that will help. You can also chat to us here. Ask anything, nothing is too silly,embarrassing or whatever..we've all been there,done it and got t shirts! In the meantime you take care of yourself and try not to worry. Remember you are a strong woman and you can get through this and you've got that lovely new car to look forward to although it may be better to advise them of your operation and rearrange collection unless you have somebody you can call on as you will not be able to drive for a few weeks.wishing you well and sending a virtual hug. God bless you. Love lamb.xx
Hi *annie* it sounds as if you are in shock.
I was only diagnosed a few weeks ago and found it incredibly hard to sleep in the early days. Night times were the worst in terms of playing out the fears in my head and over googling. I got so.me sleeping tablets from my GP and have used them when needed.
My cancer was found via my smear test. I'm not yet Menopausal and thought the random pattern my bleeding had taken on was due to menopause starting
My op is next week too, so will be going through it all at the same time as you
Hoping you have managed to get some sleep.
Enjoy the new car. Weirdly enough I've jus bought an instant hot water tap and an induction hob. Was planning to get them at some point in the future but maybe not just yet. Guess it helps take the mind off it all!
Hi little lamb
Thank you for your kind words of support. Oddly enough it was my male neighbour who suggested joining up!
I'm ringing the garage later today to ask if I can delay picking it up for a week or so as my sister is going to drive me in the old car and drive me back in my new one.
Any hints of tips you can give will be greatly appreciated as I only started to think of things once I had left the hospital.
They told me I could have a shower though mine is over the bath. So can I climb in?
Also I have to inject myself for 28 days?
I'm sure I will be on here over the coming weeks.
Anniexx
Hi Clara
Thank you for your message and I wish you all the best.
I had a smear earlier this year and that showed fine so there was no indication there either.
It only must have happened soon so at least I'm been treated quickly.
We can compare notes on the lovely hospital food!
I googled the symptoms so far I have only had two periods of bleeding. Have had back pain though I put that down to suffering with spondylosis. And tired but then have under active thyroid so tired all the time anyway!
I can at least sit in the car and play with the buttons!
Going to get some thicker loose fitting trousers i thought as well with it going into the winter months.
I hope your op goes ok and I'm sure we will be speaking again.
Take care Annie xx
Hello welcome from me too. Gosh what an awful shock to find things weren’t as you’d been told. Everything will seem like you’re in a whirlwind just now but I think you’ll find things do eventually settle down a little. Dealing with the emotional stuff that goes along with a cancer diagnosis can be hard at times - Gentle hugs coming your way.
Being practical and positive helps, I think, because it gives you the realisation that you still have some control over your life even though it might not feel like it just now. Your plan for collecting the car is a good one so go with your sister and explain to the garage - I’m sure they’ll understand. You won’t be able to drive for a few weeks but you’ve got that to look forward to and to enjoy. I know right now you’ve got doubts. I was diagnosed just after my daughter had announced her engagement and the date for the op was three/ four days before her planned party. My clinical nurse was fabulous and asked the consultant if he’d put the op back a few days so I could go - he said yes and we all had a wonderful time.
I think it’s impirtant to plan things to look forward to - they’ll only be little things at first because you wil have to build up your mobility etc post op. As you regain confidence in yourself, those things will become bigger and bolder!
Too tips from me would be to just take everything a day at a time, fill your freezer with easy meals, pack your bag (loose nightshirts, big girl undies 2sizes bigger for the post op swelling) a small towel (fold it up and press gently but firmly against your tummy when you sit, stand, sneeze etc to support yourself) peppermint tea (for wind) and most of all be kind to yourself.
Sending lots of good wishes your way x
ps yes you can climb into the bath for your shower but be very careful and if possible have someone to support you getting in and out till you feel confident
Hello Annie
Just reading your post almost exactly like my life
I was diagnosed with.just a polyp turned out it was cancer said it was early stages i was on hols in Sorrento when they rang and told me
Had an awful holiday got home had a scan then went to the clinic booked in for a hysterectomy that was 4 weeks ago said i would probably need no further treatment back to clinic to be told sorry we thought it was a stage 2 but was stage 3 and as we didnt remove your lymph nodes you need brachytherapy to make sure all clear
Also bought a brand new car it is just sat on my drive untouched
Feeling fed up as i expect you are
Thinking of you and wishing you well
Regards
Lynne
Hi Annie, I had to reply to another Annie, even though mine is a nickname from my grand daughter, who thought it was hilarious!! (real name, Ann)
I think it may depend what operation you have as to if you can climb into a bath or not. I'd borrow the seat in case, but because I had keyhole surgery I was quite mobile afterwards. I had a bath at home on Day 3, got in fine, but had to turn over and get into a crawling position before I could get out!!! I think you will find your own way of doing things, but I found the whole thing not too bad and I was 72 at the time. I'd suggest a slip mat in the bath. You don't want a fall on top of everything else.
I found bending the worst thing, and tended to kneel down, rather than bend. I seem to be one of the few who didn't get wind afterwards, too. I do remember being very thirsty when I came round and couldn't drink enough water. The nurses thought it very funny, especially as they had to write down how much went in and out. They were too busy emptying my catheter bag!!
Your sleeping should settle down especially once the operation is over. I also think it helps to treat yourself, so glad you got a car. xxxxxx
Hi good to hear from you.
I am feeling more positive today have been out to lunch with my mum and hit the shops.
It is funny what you think about and the realisation came to me that if I had the polyp removed back in July when it should have been done it would shown as benign. And it could potentially have been a lot worse because the cancer would have been growing undetected.
I spoke to the garage and they are going o bring it to my house so at least I can sit it in even if I can't drive it.
Hi Lynne sending hugs to you.
I hope all goes well for you I will keep you updated and please do the same.
It's important that we all support each other.
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